Penn Visit
Hi everybody,
Bob saw Dr. Luger today and had another bone marrow biopsy done. She was quick as a flash as usual, and he's only having minor discomfort at the site. This time brother Bill got to watch, as he took Bob down this morning. I've still got a nasty cough and lo-grade temps, so we didn't think it was a good idea for Bob to be confined in the car w/ me, not to mention the fact that practically every patient on the 15th floor is a chemo pt. who's probably immuno-compromised. So a huge thank-you to Bill( and Anne for volunteering Bill) for coming from NE Phila. on his vacation day and schlepping Bob back and forth. Thanks to Anne also for the complete chicken dinner, which I froze, since Deb T.(just out of HUP herself on Saturday) also dropped off fried chicken for our dinner. We are truly so blessed with wonderful family and friends, and I am getting VERY SPOILED, and I thank you one and all.
Dr. Luger originally told us that depending on the results of this BMBx, she would decide what clinical trial to put Bob in. Today however, she already seems to have her mind made up, and had Bob read over the protocol when he was there. She will than fed-ex the drug to us next week. I'm not sure of the name, but the drug is a "retinoid" designed to decrease the need for blood and platelet transfusions. If that is the case maybe we could get back to some semblance of our life before leukemia. Bobs' counts were good today...hgb all the way up to 10.7 after those 2 units of blood on Friday...platelets were 27,000 one week after his last transfusion, so that's holding very steady....and the wbc's are 2.7 with neutrophils >600, so that means it's still okay for Bob to be out in the "real world". Overall a positive visit. Bob wasn't given any time frame as to when we would get the results of the BMB, but he says he'll start calling down there on Thursday if we haven't heard by then. Although Dr. Luger did say that she doesn't expect that the leukemia will have changed, I'm still hoping against hope, and praying that it has. And as always, ask you all to do the same.
Thank you for the cards, blogs and calls. I know I sound like a broken record, but it means so much to Bob and I.
All our love,
Bob and Mo