Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Tuesday, May 30, 2006

Penn Visit

Hi everybody,

Bob saw Dr. Luger today and had another bone marrow biopsy done. She was quick as a flash as usual, and he's only having minor discomfort at the site. This time brother Bill got to watch, as he took Bob down this morning. I've still got a nasty cough and lo-grade temps, so we didn't think it was a good idea for Bob to be confined in the car w/ me, not to mention the fact that practically every patient on the 15th floor is a chemo pt. who's probably immuno-compromised. So a huge thank-you to Bill( and Anne for volunteering Bill) for coming from NE Phila. on his vacation day and schlepping Bob back and forth. Thanks to Anne also for the complete chicken dinner, which I froze, since Deb T.(just out of HUP herself on Saturday) also dropped off fried chicken for our dinner. We are truly so blessed with wonderful family and friends, and I am getting VERY SPOILED, and I thank you one and all.
Dr. Luger originally told us that depending on the results of this BMBx, she would decide what clinical trial to put Bob in. Today however, she already seems to have her mind made up, and had Bob read over the protocol when he was there. She will than fed-ex the drug to us next week. I'm not sure of the name, but the drug is a "retinoid" designed to decrease the need for blood and platelet transfusions. If that is the case maybe we could get back to some semblance of our life before leukemia. Bobs' counts were good today...hgb all the way up to 10.7 after those 2 units of blood on Friday...platelets were 27,000 one week after his last transfusion, so that's holding very steady....and the wbc's are 2.7 with neutrophils >600, so that means it's still okay for Bob to be out in the "real world". Overall a positive visit. Bob wasn't given any time frame as to when we would get the results of the BMB, but he says he'll start calling down there on Thursday if we haven't heard by then. Although Dr. Luger did say that she doesn't expect that the leukemia will have changed, I'm still hoping against hope, and praying that it has. And as always, ask you all to do the same.

Thank you for the cards, blogs and calls. I know I sound like a broken record, but it means so much to Bob and I.

All our love,
Bob and Mo


Anonymous Anonymous said...

holy moly, am i first again? just got back from costco with joe to load up on supplies. do we really need 32 rolls of toilet paper and 4 boxes of zipper bags? i did need the pound cakes. there nice to have in the freezer when copmpay comes. we saw the lovely KM there and had a short chat as 8pm Joe's bedtime) was approaching. bob so glad that dr.luger is quick and stealth like. what a differance that makes. glad you have a tentative plan and hopefully you will get a break from so many trips to the hospital. i told mo you bothshould have a big cocktail in the evening for her cold and your neck and knee. i wish you both a long and restful nie and will talk to you tomorrow. love Deb

May 30, 2006 8:51 PM  
Anonymous Anonymous said...

Glad the bone marrow didn't seem to painful to you.. sorry you still have discomfort from it.. sounds like the blood work was holding steady..that's good.. and glad you can visit the outside world!
Not much to talk about here today.. but do tell deb that yes, you do need 32 rolls of tp, and zipper bags.. she can put the pound cakes in some of those bags to get started!!Plus, with boys , she'll go thru most of the food within 2 weeks''trust me, you can never get out of there for under 200 dollars it seems!
Hope Mo feels good again also.. keeping you in my prayers for good results from the biopsy.. mdf

May 30, 2006 9:41 PM  
Blogger Meg Noon said...

Hey guys, just got back from the gym. Big thanks to Bill for taking Uncle Bob. Uncle Bob, hope your neck and knee aren't acting up again... Call you guys tomorrow. MEG

May 30, 2006 10:26 PM  
Anonymous Anonymous said...

This was in my mail yesterday:

Strawberry Day Bake Off
to benefit The Leukemia and Lymphoma Society
Willow Creek Orchards
check the website, evidently they are 2 miles from Rt. 73 and 363 and they have directions. Sounds like they will have strawberry pies, jams and you will be able to pick your own strawberries etc.

May 31, 2006 9:05 AM  
Anonymous Anonymous said...

Well- sounds like the visit to Penn was a good one- always nice to have a plan! Glad the trip went as well as it could...rest up both of you!
All our love,
The Booth Family

May 31, 2006 9:41 AM  
Anonymous Anonymous said...

Dear Bob and Mo,we are thankful for this BLOB to keep us up to date on your treatments and always pray for complete recovery, so you can be your old 'diamond in the rough'again.Stella and I had her first appointment at the new office off Broad st. I will guess youall will get to see the joint just as soon as your immune system will allow it. Ann and Jim folkes always ask about you and I fill them in to the best of my ability to comprehand medical jargon. In all I gather that youll do not get too low with the all the problems,and continue the good fight. When my tme comes I will use your example to keep up my spirit. Stella & Joe.

May 31, 2006 7:20 PM  
Anonymous Anonymous said...

Hey Mazzola's, keeping my fingers crossed and my prayers going for good results today!! Mo, hope you're feeling better also... good luck today if it's the day you get the results!!mdf

June 01, 2006 9:40 AM  
Anonymous Anonymous said...

Hang in there Bob and Mo!!


June 01, 2006 6:11 PM  
Anonymous Deb's Cousin Eileen said...

Bob and Mo:

I am truely amazed that you and my cousin Debbie could be so closely connected in such an serious manner...(have you two been sharing those cosmos she is always referring to?)

Our prayers are with you for continued progress.

Deb's Cousin Eileen

June 01, 2006 9:38 PM  
Blogger Eileen said...

Dear Dr. Bob and Mo,
continue to pray for good result in the 'next round" --whatever that may be.
Bob--I suppose your 'deck time' has been changed to 'air conditioning time'. The weather has been so hot and humid that who want to go out. This weekend is suppose to be nice so hopefully you can move it outdoors again.
Mo--sorry to hear that you got such a nasty cold. You're not suppose to get sick this time of year! Take care of yourself and get well soon so you can continue to take care of our favorite doctor (and our favorite nurse--DT).

Hey--what have your guys been eating lately? I've been wondering....

<3 Eileen

June 02, 2006 10:36 AM  
Anonymous Anonymous said...

Hey you guys..I worked yesterday @MSC and found out that Reen is sick,sick,sick ,so sorry to here this... it is something you surely do not need..glad your bx went well Bob..sounds like your gal should give Deb's gal lessons in bx 101..miss you all ..we're planning another "do" as soon as Deb's WC's are O.K...she doesn't want to be left out,and will let us know..possibly Monday eve..will call you ..prayers and love :)Bev

June 02, 2006 8:31 PM  
Anonymous Anonymous said...

Hi Mo and Bob,
Hope you are still feeling well(lab results were great).
Mo , did you ever get yourself on abx? Is your cough still driving you crazy-they last forever sometimes!
Well, the weather is definitely not deck weather today! At least there is b-ball playoffs, baseball, and the French Open to watch on tv.
Bob, did you find out your bmb results yet, or are you just going to go ahead with the trial that Dr. Luger recommended on your visit this week??
Thinking of you both.
Love, Kim

June 03, 2006 5:53 AM  

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