Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Thursday, May 25, 2006

Update from Mo

Good morning everyone,

Just thought I'd catch you all up, though not too much is happening. As Bob wrote, Monday was a bit of a muck-up, but he was able to get what he needed, and it really did the trick. He seems to have a lot more energy since getting the blood and platelets. On Tuesday we ran a few errands, and yesterday we went out to dinner at Hueys' in Lansdale where it was "turkey nite". We met up w/ some old pals,( Bev and Joe Z, Anita R and Anita S, Holly S and LeeW),caught up on everyones latest goings-on, shared some laughs and their precious friendship. Oh yeah, Bob and I each had a cosmo, and the turkey special....real turkey w/ stuffing, mashed potatoes, and fresh asparagus. Um, hmmm, good. Oh and Bob had a HUGE slice of chocolate cake w/ vanilla ice cream. It was wonderful to be out...felt like"old times", and I want to thank Mr.Z for generously treating everyone. Muchos gracias. After dinner we stopped by the Aranos who host our games group, and it was great to see our poker-playing buddies, Yvonne,Lee, Carolyn and Jim, Walter, Shirley and Magda. I sat in for a few hands, lost all the pennies that Carolyn spotted me, and won the last hand I played w/ Walters' money, so he came out ahead about 50 cents(we're big-time gamblers). Bob deferred from Texas hold-em, and tormented Lee by cheering for the Red Sox over the Yankees. It was a wonderful night, and did my heart good to see Bob out and enjoying our fabulous friends.

As Bob also told you, he is plagued with this strain in his neck(of course he gets much more anatomical about the whole thing, dissecting the pain into 3 separate sections, throwing in words like...trapezius, neuritis, radiculopathy etc. etc.). All I know is that it was worse at night and suffice it to say that we were not sleeping well. There is a limited number of meds he can take b/c of the low counts and GI bleeding, and GI side effects,i.e. constipation. So, as Kris M. said "paging Dr. Jamesons", and a little nip the past 2 nights seems to have done the trick. I also think that the increased activity helped, as Bob spent less time in the recliner the past few days, which I swear is contributing to the neck strain.

OK, comments from the peanut gallery,or should that be to the peanut gallery. Happy Birthday wishes to my big brother Tom. Hopefully we will get to celebrate w/ you over the weekend....Kris M.....thanks for the link...I spent Tuesday am at the Chelsea flower show and felt quite British. Also as of Monday, Tigers was still Tigers in Kulpsville. I'm sure, b/c that's where Bob and I had breakfast. Sorry your shoulder's acting up. Have you tried Dr. J.(hmmm, double entendre?).....Rhonda H....looks like you're gonna have to give up your recipe for your special choc. cake. Actually a ready-made cake is always welcome at Calverton Ct. says my husband. He especially likes it nuked w/ vanilla ice cream, as he had last night....Ann M, thanks for the gap link if that was you. Had already gone on, and ordered Bob jeans and khakis. Also found dockers at Kohls that have an adjustable waist(I'm gonna need them for myself soon, if I keep joining Bob in his binges) that look good on him.....Debbie darling, so good to hear from you, and such a long post. Your fingers must have been tired after that. Hope you're doing well. I've called a bunch of times, but stopped cuz I thought you might have been sleeping. Now I know you were out to eat, or at your new peaceful spot. Good for you. Give us a call if you feel like it. Miss talking to you....MDF, Deb says she thinks your house sounds like a riot....I think she means that as in funny....I think it sounds like riot, as in you need the National Guard....homemade fire extinguishers and hot air ballons??? Scary!!!!....and finally, Jessie, hope Mr. C.'s all better, and hasn't passed anything on to Miss Emma or you and Walid.

Hope you all are doing fine. We appreciate the continued blogs, cards, and calls. And as per usual, please keep the prayers and good thoughts going.

All our love,
Bob and Mo

P.S. Who the heck is the anonymous who wrote about the PMS diner anyhow? Thought I had it figured out, but I was wrong and am stumped. Unless it's YA....????

11 Comments:

Blogger Eileen said...

Mo and Dr. Bob
This is really a lesson in the grass is always greener..... Mind you, I REALLY, REALLY don't want to be sick, but you sick people (Bob and Debbie) sure do seem to eat out an awful lot!!! Breakfast at Tigers, turkey dinners at Huey's, cheesburgers at Penn, fried cheesecake (never even heard of that one!), secret chocolate cake recipes, etc. etc. Know what delicious culunary delight I served my family before we dashed out to soccer practice last night? Frozen chicken nuggets and french fries---Yummy! (NOT) The last meal I ate out was at WAWA --coffee and a soft pretzel. Jealousy does not become me and I'm turning green with all this food talk!! STOP ALREADY!!

OK--now that I got that out of my system, I can return to being my calm, rational self. Glad you are all feeling well enough to be indulging in one of life's biggest pleasures--EATING! I really do wish you many more months, years, decades of fine eating excursions. Stay strong and bon appetit!

<3 Eileen

May 25, 2006 1:38 PM  
Blogger Jessie said...

Hey there guys, so happy to hear you're out and about. It is always good medicine to be around good food and great company!

We've barely been home these last few days, I pack up the car with bottles, sippers, and snacks and once we make it out we've been staying out. The kids napped in their strollers the last two days which seemed to work out ok since they both managed to sleep at the same time which is rare during the day. I am content to live as a nomad for now - everyone is healthy here and happy too - and I'm typing with one hand so I must keep this short. Miss Emma likes to eat every two hours! Thank God we're bottle feeding her!!! Great to here from you, sounds like you're doing a great job keeping your peckers up! Love you both!

May 25, 2006 3:17 PM  
Anonymous Anonymous said...

I love that both you and joe let us know what your spouses are eating.. and to keep up with you all, i thought i would share that i had crispix for breakfast, carrots and peanut butter filled pretzels for lunch, and never really had dinner, but don't worry, didn't go hungry, i did have dessert.and also nibbled on the cookie dough that patrick made.. anyway, i know it's because you finally have a good appetite again,a nd i am so happy to hear it!!has the nect pain subsided with the increased activity? or gotten worse?
My house does seem to be a little active lately,, but isn't that normal with teenage boys? Mark has a baseball tournament this weekend and most likely on monday we will be going down to great america in santa clara, for a fun filled day!! I actually just bring a book now and read while the boys do all the rollercoasters....it s more fun to watch people, than to make yourself sick!
we only have 9 days left of school and the kinders are sooooo excited to be almost 1st graders!!Our new student has even improved,, like i said before, he hasn't called me a MF since the 2nd day, although he did call a lady bug walking up his arm a bastard the other day, still needs some work!!
Dr.. Mazzola,, happy that your getting out and feeling a little better.. turkey sounds like a good meal about now! Make sure you pace yourself(sort of fun telling a dr. what to do, or at least suggest what to do).. i'll talk to you later.. mdf

May 26, 2006 1:45 AM  
Anonymous Anonymous said...

hey mo and bob, you sound great! sorry about another trip to cmmc for blood but at least its local and you will feel zippier afterwards. sorry i missed dinner at hueys. i spoke to bev and it sounded great. next time i will join you for sure. eileen and may day are right ,we talk alot about food. i have enjoyed my outside meals and walks. its made a huge differance to be in the fresh air and getting some exercise. i've been running a low grade fever (not higher then 100.5) for the last 3 days so lets hope it stays put or goes away. had a long chat with dr.porter yesterday and willshare that with you on the phone. all is well he just thinks my "bizare Marrow" is not done rearing its ugly head despite 2 bmb showing remission.i guess time will tell. one day at a time one day at a time!!!!!! hope you have a quiet relaxing weekend and will touch base when we get back on mon. glad you liked kathy k. she is my fav. althoughall the vn are wonderful. lots of love to you both. take good care of each other. love deb

May 26, 2006 10:46 AM  
Anonymous Anonymous said...

Hello Dr. Bob and Mo! My parents are away in Maine for the week, so I am checking in and reporting back to them on how things are going. . . have to say, it's always nice to read the 'boring' blogs- cuz that usually means things are going well!! :) Keep goin strong!!!
Sarah and The Booth Family

May 26, 2006 2:48 PM  
Blogger Linda Sheets said...

Dear Robert and Mo, Sounds like you both have been very busy. Seeing all your friends and family, and playing texas hold em. My favorite game. Our prayers and thoughts are with both of you

May 26, 2006 4:37 PM  
Anonymous Anonymous said...

i can't imagine my life before mdf. my only regret in life is that i didn't get to work with all of you "back in the day"....km

May 26, 2006 10:55 PM  
Anonymous Anonymous said...

wait, i must correct myself. i did work at nph in '74. before your time. i think bob was there, in fact i would put money on it.

May 26, 2006 10:58 PM  
Anonymous Anonymous said...

HI Guys ..it was so good to be out with you the other nite,and I agree the more you are out the less pain you will feel ..it works for me..but .."drugs are us"..does seem to be my middle name...Joe is starting to keep track..Uh0h..Bob..looking good honey..keep up the eating ,it looks good on you..and you're old time sense of humour is back too..what fun.. Anita R said something about going down to St Rita's shrine soon..I'm on board..in fact I'll drive..so let me know when ..be good my dears ..much love and prayers :)Bev

May 28, 2006 9:47 AM  
Anonymous Anonymous said...

New PBS Documentary Points to Continued Need for Research and Patient Services

A Lion in the House, a two-part documentary scheduled to air nationally on PBS June 21-22, is a poignant reminder of why the Society's relentless quest to cure blood cancers continues unabated.

The film tackles issues of pediatric cancer treatment and survivorship, and powerfully presents urgent calls to action. The Society is working to help answer these calls, with research programs, patient education and heightened advocacy initiatives

May 28, 2006 5:14 PM  
Anonymous Anonymous said...

Hoping no news means you are enjoying the long weekend and getting lots of deck time.

May 28, 2006 5:16 PM  

Post a Comment

<< Home