Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Monday, May 08, 2006

Day 41 Admission

Hi everyone,

Where to begin? This has been a day of frustrations for us. Bob called this am and told me he had some right-sided chest discomfort during the night--worse with deep breathing. He informed the hem/onc attending(our own Dr. Luger is not on call this week) and entourage, who said it sounded like nothing and they would "watch it". They also apparently were leaving the problem of the culture and antibiotics in the hands of the ID drs. Bobs' WBCs today were 3.6, his hgb was stable at 9.2 and his platelets were low, so he got an infusion of them. His ANC was still not back as of 8:45p, so I'm guessing it wasn't even done.

When I arrived I questioned Bobs' nurse as to why there seemed to be such a delay w/ the switch in ABx and was told the ID dr. usually "rounds" late in the afternoon. I than asked why there wasn't at least a chest x-ray ordered when there seemed to be a pleuritic component to Bobs' pain, which he still had.(Us poor nurses...we always get the wrath of the families after the docs leave). So Rachel got a CXR order from God knows who, and Bob was taken down to the department for that at 5pm. Dr.Shuster(ID) arrived on the floor at 6p, but as of 8:45p when I spoke to Bob she still had not been in to see him. And to top it all off, when I was leaving I told Bob he looked flushed and he now has a temp of 100.2. So, I think it's safe to say that Bob will not be discharged tomorrow, and maybe not even Wednesday at this point. We are disgusted, and not even so much that the discharge is being delayed, but b/c there seemed to be such a blase attitude about everything today. On Friday, there was such a sense of urgency, and than...nothing. Just more of the roller coaster ride that you never can adjust to. Bob kept his cool for the most part, but I could tell that it was difficult for him to do so. He had that "bottled up" sort of look that he gets when he's trying not to explode. He told me on the phone that he's going to give them "tsurus"(spelled phonetically) tomorrow. He said that's Yiddish for a pain in the a$$.He was calmer by the time we hung up, and was going to try and sleep. I think the temp was making him punk. We did have a nice dinner together at least...finished up the lasagna, Santa. And no it was not salty at all, it was delicious, very cheesy.

Now on a lighter note, Bob enjoyed the blogs today...got quite a few chuckles, and had a few comments.

To Rich F.....Bob says his cr. is 1.1 and he has been on norvasc for his bp. Today he was 140s/70s. He also said you would know tsurus. I said are you sure you don't mean he is a ....no, no, just kiddin. How do you like that? Blog to Bob and you get insulted.

To Hatfield girl and Jim...the mustache is definitely thinner, but it's still there and I can't see any mole. I think he made that up. In that same vein, I'll tell you it's been almost 2 weeks since Bob had to shave, and every time I straighten his sheets there are hairs on the pillows. So the fringe is definitely sparser also.

To Linda...that's Dr. MOzzola, and if Bob doen't listen to me I know where I can get a great nurse in Flourtown to come and back me up.

To Bonstance, we are quite impressed w/ your card creating capabilities(alliteration unintended). You should go into the business, and Kate loved your Disney stamps...we Noon girls notice all those little details.

To Kris...thank you for all the research, and Bob had some interesting trivia of his own to add. Debbie, maybe you remember this cuz I know you were a big St. Elsewhere fan. Okay, the very last broadcast episode of St. Elsewhere ended with a scene in the ER. Howie Mandels' character heard singing, and pulled back one of the curtains to find a woman dressed as Brunhilde belting out her aria. So everybody knew the show was over cuz the fat lady etc. etc. Bob also told me that in Gotterdammerung, Brunhilde is singing from Hell, b/c her father Odin banished her there back in the second ring, so she's one of the first characters to die. Don't you just love opera? You can still sing your heart out when you're dead or dying of TB. Alright, well that's the second time I've mentioned Wagner on this blog and it's 2 times too many for me.

Well, I feel a little better after getting some of this stuff off my chest. You all have been wonderful. Thank you for the cards, blogs, visits, gifts and calls. I can't find the words to tell you just how much your love and support mean to us both. I can see how touched Bob is every day when he opens a new card or reads the blogs, and that lifts me up. So please hang in there with us. We are still hoping for d/c sometime this week, but not counting on a specific day until it actually happens.

All our love,

Bob and Mo




15 Comments:

Blogger Jessie said...

Ugh - what a day for you guys! I'm sorry to hear the fever is back on top of the run around it sounds like you received today at HUP. I know you both must be so disappointed to prolong this adventure a few more days. Hope Dr. Bob is feeling better tomorrow. Hang tough you two - we are always thinking of you! My family (doesn't that sound strange - my family? There are four of us now!!!) has been asleep now for an hour so I should join them before they start to wake up! Hope you are both getting some much deserved rest and that you'll have a better day tomorrow.

May 08, 2006 10:38 PM  
Anonymous Anonymous said...

Hello Bob and Mo!
I am home from school for about a month to study for the first round of board exams - which i am taking exactly 3 days before my wedding- AHHH! :) I finally got to your website and now will be checking in to see how things are going- and to send love from my parents, who are unfortunately not so good with computers, but do manage to read the blogs EVERY night!
Hopefully tomorrow will be a better day than today was!
Love,
Sarah Booth and family

May 08, 2006 11:07 PM  
Anonymous Anonymous said...

man oh man! that's all i can say. what a disappointment. i hope that tomorrow brings better news. xoxox kathi

May 08, 2006 11:19 PM  
Blogger Istari #6 said...

It's always the worst when you think you're going to leave and then don't. I know your patience is being tested and you feel like butter spread to thin on toast; but I also know you can overcome it all.

Hang in there. We are with you.

May 08, 2006 11:59 PM  
Anonymous Anonymous said...

Oh Geez!!!
I don't message for One day and everything "goes to hell in a handbasket" (whatever that means, but Dad used to say it...among other things). I'm sure Kris will know.
The fat lady singing....sooo many meanings!
Bob, I hope this is a better day for you and that the fever didn't continue to pester you through the night.
Praying that they can get it together today so you can get outta there before the end of the week. Your perseverance seems to have no end.
You both have my admiration.
I'd say "peckers up" as was so frequently used on Debbie's blog, but I find it a little difficult to write to you.....you get the idea.

Love, Kim

May 09, 2006 6:41 AM  
Anonymous Anonymous said...

Hi Dr. MOzzola (Mazzola), I think there is no hurry for the staff to get you out of the hospital since your wife brought in sticky buns from the Distelfink. I think they are hoping for another box of them. I hope you have a good day today. By the way, did you hear about the man who fell into the upholstery machine? ... He is fully recovered. Linda V.

May 09, 2006 7:17 AM  
Anonymous Anonymous said...

OH, .... what a b....! This roller coaster has more surprises than "24." Bob and Mo, hang tough. I know better days are coming. Looking forward to seeing you at home. You must have good insurance,besides the sticky buns, that's the only way they'd keep you this long.

Bill C

May 09, 2006 7:38 AM  
Anonymous Anonymous said...

Mo and Bob,
what a bummer! your numbers are doing there part and now this delay. well when things go down they must come up right?hopefully your fevers willgo away and the chest xr will be ok and you will be home by wed. where the heck is the culture anyway? i know that our friend mindy is on top of things. praying extra hard right now for a trip up the skullkyll in the next day or two. lots of love Dt

May 09, 2006 8:01 AM  
Blogger Patty Gianfelice said...

Dr. Bob and Mo,

So sorry to hear about the lousy day yesterday, very frustrating indeed. Not to mention disappointing, I know how much you guys just want to be in the comfort of your own home. Hang in there, what's that saying... it's always darkest before the dawn... Just another hurdle to jump before you can relax at home. Think of the positives, at least you guys weren't home and had to rush back to the hospital, right. Just trying to be positive.

Keep the faith... continuing to pray for your better days.

Patty

May 09, 2006 9:33 AM  
Anonymous SantaC said...

It is really a great hospital except for getting in and getting out! If if weren't for Maureen, they couldn't track you temperature. I hope they figure out the chest pain soon and you get some rest and get home. It is time. Then again, they may be holding on for more stickey buns. Love you both.

May 09, 2006 12:47 PM  
Blogger Eileen said...

I agree with Santa--HUP is such a great hospital, and has such a great reputation, but they sure seem to mess up the admissions and discharges. Hopefully you will be out of there soon---40+ days is enough already. Just say "no" to fevers and chest discomfort! Prayers for all.
Eileen

May 09, 2006 2:13 PM  
Anonymous Anonymous said...

Hi Bob and Mo,
Tried to write earlier today but for some reason I couldn't get my comment to publish. These new fangled machines, you know computers, can be tempermental.
I know I have figured out the cause of Bob's fever last night. It was the "steam" building up inside after a horrendous day.! Hang in there Bob, this roller coaster will take you home soon.
Have to agree with all the other bloggers, HUP is a great hospital, except for the fact that you can't get in nor get out. At this point I know we could round up a posse of bloggers and come down to HUP and find the blasted Culture.
Hope by now the chest pain has subsided, or at the very least been explained. Both of you sounded so weary last nite, hope you both could catch some sleep somehow.
Day 4 of the St. Anthony novena, I know he won't fail you.
Love,
Anne

May 09, 2006 2:49 PM  
Anonymous Anonymous said...

...."your day will come, la, la , la , la. lala...." sorry it wasnt today.. i had to quickly write a song to you to divert your attention away from Kim sending you porn...
so sorry about the fever! Did the cxr ever show anything??once they get you under control, they should know that they are releasing youto one of the best nurses i've ever met..
Stay tough Dr. Mazzoa.. prayers are continuing your way.. mdf

May 09, 2006 3:42 PM  
Blogger Carolyn and Jim Stuart said...

Bob and Mo:
I was so hoping that by tonight, I would see a blog giving an ETA for home! As someone said on the blogs, better to get all resolved BEFORE leaving.

It must be so difficult to know that the discharge is "so close but yet so far" (is that a song title? does anyone know the origin?)

Hang in there kids! Bob, bet you just wanted to stay for another round of Salisbury steak!!!!

May 09, 2006 5:47 PM  
Anonymous holly said...

Dear Bob and Mo-
I was hoping to hear you were headed homeward, keep hanging tough!! It sounds like home is in sight! Hey Bob, did anyone eat the nuts off the top of the stickey buns? The buns were safe, Bev is in Puerto Rico this week!!
Mo thanks for your e-mail. Don't you feel bad for one second about not stopping by. We know how busy you are, I think it's amazing you find time to blog every night. I feel like there are not enough hours in the day and my life is not even near as busy as yours. We all think about you guys every day and share all the news we get with everyone at MSC. Mo- to answer your questions- Dr. D is back and Max joins us on Thurs- now we just need you and Deb T. to make things perfect! Gretchen is doing great and has been in to visit 2 times. Ali is away and due back next week. the schedule is quite busy right now. I'm actually working "full time"!!!!
Well take care, hurry home Bob. Mo call if we can help!!!
Love, Holly

May 09, 2006 10:16 PM  

Post a Comment

<< Home