Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Monday, May 01, 2006

Day 34 Admission-------Day 14 HiDAC

Dear friends and family,

It can not be May already...can it? Unfortunately it is not starting out so merry for Bob. I took the train down today, arriving at 11am. A new hem/onc fellow was attempting to do Bobs' bone marrow bx(BMB). I say attempting, b/c she was on her 3rd try, and I think would've continued, but Bob asked her if she was thinking of asking someone else to do it.In all fairness to this dr., I have to tell you that she stood about 5'2" and probably weighed 100 lbs. I think she actually couldn't get the leverage and oomph that this procedure requires. After that she searched out our pal, Dr.Ara, who agreed to do it at 1:15p. At 3:15 while Bob and I were both dozing off Ara arrived. I had to leave to catch my train home, but called Bob as soon as I got in, and he said Ara did the BMB in a flash....you either got it or you don't, and Ara has got it. So, we will find out whether or not the HiDAC did its' thing in a few days. Although this sounds gruesome, Bob claims the site was anesthetized really well, and he has no pain. He does however have a very large hematoma at the first doc.s' site, despite almost 2 solid hours of an icebag application to his left cheek. But at least he has no discomfort, so that is something.

Now, what he does continue to have are fevers. The ID doc. was in today also and she feels that the fevers are basically from the neutropenia(low WBCs) and not any dangerous infection. Bob felt good today, and looked good also. He is back on IVF's since he is having a high urine output, and they don't want him to become dehydrated especially in the face of his fevers. They aren't sure exactly why he is putting out so much urine, so they're checking his blood and urine electrolytes. As I've said so many times already, they are really on top of everything, and deal with each problem as quickly as it arises. His hgb and platelet counts were stable today, so he didn't need any transfusions. He couldn't get any laps in though , b/c of the BMB. He is still eating whatever comes on his tray, and again I have to give him high praise for that.

I think that's about it. I thank everyone for their extra prayers and good vibes. We feel them all, and know we are surrounded by your love and support, and that means the world to us. Please keep 'em coming as we await the results of the BMB.

All our love,
Bob and Mo

13 Comments:

Anonymous Anonymous said...

OOOOHHHH BOB, thank god dr. ara came to the rescue. you poor baby. your hinney will be sore tomorrow. keep up the ice. i thought about you all day and i'm glad its over with. hopefully the fevers will be next to go and you are another day closer to coming home. sleep well. love dt

May 01, 2006 8:29 PM  
Blogger Patty Gianfelice said...

Dr. Bob and Mo,

What a horror story... thank goodness for Dr. Ara! Hope you get a good nights rest and that your temperature gets back to normal. Hoping and praying that you get good results from your biopsy.
Look forward to your update tomorrow.

Patty

May 01, 2006 9:19 PM  
Anonymous Anonymous said...

Ice is one of my favorite tx's after pts. have been "brutalized". Keep using it. Sorry Dr. A. didn't show up sooner. You're a trooper! You guys keep hanging in there and I'll keep on prayin', especially for those fevers to take a hike.

Lotsa love & prayers flowing your way. Mussie

May 01, 2006 9:28 PM  
Anonymous Anonymous said...

Gosh what a nightmare..I guess you'll be able to write a book when you get out of there..maybe you and Debs can collaborate??? In honor of your Bx ,I started a nine day novena...I'm on the third day so Jesus knows I mean business Dr. Bob!! Keep up the ice and your pecker too..it can't hurt..Nancy sends love and prayers(that's why the pecker addition)I saw Mackenzie today after the 5 day trek to Arizona...she's back to being the screaming jellybean..just would not let me get near her...she is tough!! areal drama queen..Michelle wonders where she gets it...I do recall several major drama's with the girls in your office Bob..having to do with sliced fingers and running through LMG to Cozz's office and giant red lipstick kisses...oh well hopefully one day the jellybean will relent and let me in...in the meantime I just bide my time...take care you..sleep well andsee you soon xxoo:)Bev

May 01, 2006 9:45 PM  
Anonymous Anonymous said...

Didn't we say," for Pete's sake"when refering to Peter Fumo in ICU..I thought that's where it came from Debs..maybe it was St. Peter..coulda been Mich's old boyfriend Pete Cotrell??? Oh well someone will know for sure..bye for now again..xxoo:)Bev

May 01, 2006 9:53 PM  
Anonymous Anonymous said...

wishing, hoping and praying that we can get good results from the days discomfort. all of my thoughts are with you both. always. kathi

May 01, 2006 10:44 PM  
Blogger KMcLay said...

For Pete's sake!

Thanking God that Dr. Ara came to save the day. I second everything that dt has to say. Know that we are praying for you. Hope you have a peaceful night with a minimum of interruptions. Remember you are one step closer to home... God bless you guys.

K

May 01, 2006 11:04 PM  
Anonymous Anonymous said...

Boy.. i too hope it was worth it.. did you say 3 tries? well, they say the third time is the charm.. Dr. Mazzola,,i don't think you are classified under the typical male syndrome.. cause i believe most of them would surely be in major complaint mode by now..either you're a really tough man, or you have a really tough as.. i mean behind..
still warm here.. just got through watching the red sox beat the yankees..nice way to end my father in laws visit..he goes back ot boston tomorrow..
Mo..you sound good also,, nice to know your able to catch some sleep in bob's room, and don't take it personally that he enjoys the hospital food.....
praying for good results of the bone marrow biospsy.. ttyl..mdf

May 01, 2006 11:10 PM  
Blogger Ronda D (Hessler) said...

Dr Bob and Mo,
We still have the prays going here on the home front. Sorry to hear about your hard time today, but thank goodness for lots of numbing and that ice. And of course Dr Ara!!. We are wanting to hear the news. Get some rest.
P.S Mo Just in case you have know idea who this is i am the one who brought you your flowers at night when you come home from visiting with Dr Bob. good night. Are prays are will you, Ronda and Nancy H

May 02, 2006 12:59 AM  
Anonymous Anonymous said...

OH, FOR CRYING OUT LOUD!
(Kris, I'd have you search the origin of that phrase, but I think it's self explanatory!) It is also what I would have been doing at that point.
3x before the little sh%$ called for reinforcements?? (I can say that, since I know someone intimately 5'2" and 100lbs....give or take). Glad you survived that and awaiting GOOD results.
Mo,also glad you ditched "the hateful road that can't be spelled", in favor of the train.
Hoping for a peaceful day for you both.
Love, Kim

May 02, 2006 7:07 AM  
Blogger Jessie said...

Glad the BMB is over with. Quest has a new blood test that will soon replace the BMB! It will make things so much easier for everyone.

Take good care of your tush today and hope the fevers will be coming down soon. It's time to go home! Love you guys!

May 02, 2006 8:11 AM  
Anonymous Anonymous said...

Hi Bob and Mo,
Gotta love that Ara guy ! Maybe we should all send him some cookies.
It was great talking to you last nite Mo, once in awhile I just really need to hear your voices as we have not been able to visit.
Bob, hope the hind quarters aren't too sore today, but more importantly I hope the results are all what we want. And Mo so happy you are now transversing the city on the rails. It must reduce your stress level a little bit.
Needless to say the prayers are still going strong, at this point I believe the heavens are rattling and rolling.
Okay for now guys, hope to talk to Bob later today. Love ya both.
Anne

May 02, 2006 9:41 AM  
Anonymous Anonymous said...

In the bone marrow biopsy "game", one strike is out. Bob, you were most patient. Will call tomorrow about the results. You are due for some good news. Charlie

May 02, 2006 5:20 PM  

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