Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Friday, April 28, 2006

Report of Day 30 Admission Day 10 HiDAC

Good morning everyone,

Let me say right at the start, Bob is fine. I didn't post yesterday b/c I just needed a break...a day away from the computer. I didn't see Bob yesterday as I had several errands to run that had to be done during "business hours", but I talked to him frequently and he had several phone calls which helped to lift his spirits. I'm going down today, but will take the train as the Penn Relays are in progress, and we're told it's sheer bedlam in the U of P area now. So, I'm sorry if I frightened anyone, certainly not my intention. Now to Bob.

Wednesday afternoon Bob spiked a temp and was put through all the paces of the "checking for infection" routine. He had a CXR, blood cultures and urine culture...was given tylenol and the temp broke. He also started to have some lower Gi issues(read diarrhea) and is being given immodium for that problem. He's still eating, but not w/ his usual gusto. He had only a fair nights' sleep on Wed.

Yesterday he needed 2 units of blood(remember on Wednesday they didn't want to transfuse him for hgb 7.8 b/c they thought he was too fluid overloaded?) and platelets, so he went the way of the benadryl once again and had a sleepy kind of day. The GI issues settled down a bit, and he was able to rest. In the afternoon however, he had another fever and went through the whole culturing bit again. The temp came down after tylenol, and he he slept "pretty good" last night. Which probably means 3-4 uninterrupted hours at a time. When I talked to him yesterday he sounded out of sorts(i.e. grumpy). And who can blame him? I have to say that's truly the first time in over 4 weeks that I actually heard impatience in his voice. As I've said before he has been such a trooper...just amazing!

This morning he sounded like his "old' self. He was sitting up in a chair trying to read(his usual after breakfast routine). Unfortunately he now has conjunctivitis in his left eye and constant tearing which is making reading very difficult. He's on drops for that, but I think it's going to be a bit till they start working. It's such a shame, b/c reading has been a real saving grace for Bob. He's been so pleased that he's been able to concentrate...actually more than that...he says he's really able to focus on what he's reading and get a lot more meaning out of things than he usually does. So I hope that clears up soon. Any tips or input from my MSC pals would be most appreciated.Hint hint Holly, Deb, Dr.N.

Bob's still in the "nadir" as all the oncology professionals are so fond of saying...meaning that his white count is zero or barely above. He has no neutrophils(the white cells which fight infection), which makes him susceptible to all kinds of germs etc. He's due to have his bone marrow biopsy(BMB) repeated on Monday or Tuesday, and we'll learn the results of that a couple days later. In the meantime, we're just hangin' in, or maybe that should be hangin' on. This is beginning to feel like the long ordeal we expected. I know I shouldn't whine, especially with the two shining examples of stoicism I see every day...Bob and our good friend Deb T. Please remember Deb in your prayers too. She is still at HUP w/ high fevers from her chemotherapy.

As always I thank everyone from the bottom of my heart for all the support. The cards, calls, blogs and visits are holding us up. Without them I'm sure we would be downward spiralling. Really, I can't explain how much it means to feel your love.

All our love and gratitude,
Bob and Mo

P.S. If anyone wants to visit Bob he is certainly up for that. Maybe I should've come out and said that before. Just please give Bob or me a call to make sure he'll be available.
  • Bobs' room phone....215 615 8116
  • Mos' cell.................610 322 7142
  • Home phone...........215 855 9246

P.P.S Hi Mandi, just read your post, and this is probably strange writing to you on here, but Bob and I would love to meet you also. You are welcome to visit anytime at all. I know Bob would give a hearty seconding to that.

22 Comments:

Anonymous Anonymous said...

Where have all the bloggers gone ? isn't that a song title ?

I think Mo is dispirited. She writes a very informative blog each day, but very few people blog back( yet we know a lot of you read her daily journal)
It must be an effort after visiting daily, keeping spirits high and the travelling time.Whew! I know I would not be capable of that. please cooperate and blog a "Hi!" to Bob , or Mo.

If I,a blogging and computer Dummy can do this ANYONE can.

Our love to Bob and to Mo, Barbara Streisand

April 28, 2006 11:57 AM  
Anonymous Anonymous said...

Hi Bob and Mo,

Smart idea taing the train. I remember years ago visiting my brother Clyde while at HUP and the flower show was on, it truly was a zoo.
Happy to hear your feeling a tad better today Bob. And Mo is right you truly have been a trooper these past four weeks. You are definitely a role model for any patient, handling each day with dignity and class !!!
Bill seems a bit better today. I truly believe he will kick this bronchitis soon if he only can get a good nights sleep.
It has been an interesting week here with both Bill and our dog having bronchitis....and now just to make life even more interesting our dog has sprained her knee cap.
Still saying my special prayer for you Bob, and will continue to do so everyday.
Love to you both,
Anne

April 28, 2006 12:07 PM  
Anonymous Anonymous said...

Thanks for the update. Yes I was worried about no blog yesterday. I have a question, do you need blood donors for either Dr. M or Debby T. I keep reading blood transfusions and I keep hearing how the banks are low, etc. I am willing to donate (lots of 0+). Please let me know. Blog back or call 215-368-8170 if you need anything.
Ann Morgan (patient)

April 28, 2006 12:20 PM  
Blogger Meg Noon said...

Uncle Bob, hope that the fever has gone down and your eye feels better so that you are able to read. See you soon. MEG

April 28, 2006 2:05 PM  
Anonymous Cozz said...

Dear Bob and Mo,

I just visited your new office digs and its quite impressive! Plenty of room and well laid out. A great idea. It was there that I found out about your blog site.

I know when you get back you will love working there and I am going to visit again if only to get lunch. My real purpose in writing is to tell you an inspirational and absolutely true story about a good friend of mine from residency days, whose name believe it or not is Jack Kennedy.

He was a GI resident when I was a surgery resident. About 10 years ago maybe more, he developed some damned thing with his blood and I do not know the exact nature of it but I do know that he went to MD Anderson had a bone marrow transplant was sick as sh*t for god knows how long and has been wonderfully fine ever since.

He came to my sons wedding just a few weeksago, Jimmy got married. I hope and pray we get a repeat here and I feel we will and we will be happy to grab some lunch from you.

Good Luck and God bless you,
Jim Cozzarelli.

April 28, 2006 2:17 PM  
Anonymous Anonymous said...

Just letting you know that I''m thinking of you,



Mary Gerhart

April 28, 2006 3:34 PM  
Anonymous Anonymous said...

I had a feeling you were taking a day off,, good for you!! This whole situation is not fun, but at least it makes us happy to hear that he is feeling more like himself, do they have any idea how much longer he'll be there? What is this thing that is going on in pennsylvania? It's been almost 90% here!! tomorrow mark has a baseball tournament in sacramento, and then on sunday patrick and a friend are taking the ferry to San Francisco to watch the Giants!
Take days off whenever you need to, and Dr. Mazzola.i really hope you start to feel better this weekend and get over these fevers.. ttyl.. mdf

April 28, 2006 3:56 PM  
Anonymous Anonymous said...

hello roberto,
sorry i have not written in 2 days but was feeling poorly. i justvisited with mo and we decided that instead of kitty being my evil twin (as in amourous predator(i think you have taken on that roll(not the predator part).Mo tells me you are now having a CATscan of the lungs.Me to. well on the serious side you are doing sowell. Mentally and physically strong day after day. i think you and mo always were the perfect match.But especially now your devotion to each other inspires me and all of us that know you.i told mo that i think you can see the end of the light of the tunnel. by next week maybe your numbers will be recovered enough to come home and you mo will be sipping iced tea on the deck. sleep well and i hope the fever stays down...
lotsa love debbie

P.S.dear barbara striesand, thank you for your timelypost. we all need our blogs to help get us thru the rough spots

April 28, 2006 5:46 PM  
Blogger Istari #6 said...

I noticed the message about the book being the 4th in a series. Let me know the series and I can probably get the first three ASAP.

Starting to think that my own situation is improving enough that I may get there late next week--if you're still there.

If Bob lost five pounds I have a pretty good idea where they went. Thank heaven for elastic waists.At least we're keeping it in the family.

Speaking of family. Let's see, Bob at HUP, Santac with "teacher of kids" cold/virus and Me with the annual bronchitis episode--and all at the same time.
Whadda you think, some sinister, sympathetic psychoses?? I prefer, the family that ails together, heals together.

Further updates. Kate's been casted in a One-Act play program in NYC and has been called back for the Vermont Shakespeare Festival (fingers crossed) and DJ is living and dying with the Flyers.

All send best wishes and ask whats with Barbra Streisand?

April 28, 2006 6:21 PM  
Blogger Meg Noon said...

Debbie,

You will definitely be dancing on rooftops at the shore next summer. Glad to hear that you are pushing harder and digging deeper. Things are only looking up for you and Uncle Bob. Feel better and stay strong.

xoxo MEG

April 28, 2006 7:23 PM  
Blogger Meg Noon said...

Whoopsies Uncle Bob... looks like I accidently blogged Debbies blog on yours. I really thought that I was on her blogsite?!? Oh well, anyways, things are definitely looking up for you and Debbie! Hope you had a nice visit with Reenie today! MEG

April 28, 2006 7:26 PM  
Blogger Jessie said...

Hi Dr Bob and Mo,

Thanks for posting, and for doing such a great job keeping your spirits up! I hope the eyes are back to themselves soon so you can read on and pass the time at HUP. Keep up the fierce fight!

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