Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Tuesday, May 02, 2006

Day 35 Admission------Day 15 HiDAC

Hi everybody,

Well, despite the continued temps of 102, Bob is still hanging tough. Dr. Shuster, the ID doc. still feels that Bob "just needs a white count." He seems pretty bushed today though, and has been napping off and on since we arrived at noon. Meg came w/ me today on the train. She had a day off for a dr.s' appointment, so I went to that w/ her and than we came down here. Bob had 3 separate visits this morning before we even arrived, so he's had a full day. I want to thank Mr.P. for the info on blood donations(I'll blog about that later when I have more time at home. I'm on the family room PC and don't want to take up too much time here). Bobs' counts are holding their own and his WBC is 0.5 which is actually a tad higher than the last few days, so maybe we're on the upswing. That being said, we need to take into consideration that before the myelodysplasia changed to leukemia, Bob needed neupogen shots to stimulate the white cells to get his count to a normal level. So we're not sure exactly how high his count will go, or even if he will still have the MDS. All points that we hope will be addressed in the next day or two, when we get the BMB results.

I tried to talk Bob into walking today, but he seems too tired. Maybe later if his temp stays down. He's just finished his supper of chopped steak...not sure what the distinction is between that and Salisbury steak???...and is going to try to stay awake to work on the crossword and sudoku. He's also planning to watch more of Return of the King this evening on DVD, and his streak of TV-less days is now 35.

Bob sends his love and thanks to everyone, especially all his visitors today, as well as the card and gift senders and the dedicated bloggers. I just can't tell you how much he looks forward to reading those each day. My thanks for remembering us in your thoughts and prayers...we are forever grateful.

All our love,
Bob and Mo


Blogger KMcLay said...

What do we want???


When do we want them?


Sorry to hear you are still in the fever zone, Dr. Bob, but happy to hear that your wbc's are starting to creep up and that your counts are hanging tough. Prayers continue to come streaming your way. Hope you can feel the love!

Take care and talk to you soon - K

P.S. Now about that Salisbury steak business, who the heck knew this?

"Salisbury steak.
A patty made of ground beef and seasonings that is usually broiled. The dish was named after Dr. James Henry Salisbury, who devised a "meat cure" for Civil War soldiers suffering from "camp diarrhea." Salisbury insisted they be fed a diet of chopped beef patties cut from disease-free animals' muscle fibers...He went on to advocate this same diet for all Americans, advising them to eat beef three times a day for health benefits. The term dates in print to 1895. The Salisbury steak is often cited as an early example of what was soon to become the hamburger."
---Encyclopedia of American Food and Drink, John F. Mariani [Lebhar-Friedman:New York] 1999 (p. 280)

May 02, 2006 7:51 PM  
Anonymous Anonymous said...

Dr. Bob, don't you just love that girl kris. alwaays has the most interesting info one can imagine. and always at her finger tips. since i'm having the opposite problem of those poor civil war soldiers i will continue to steer clear of hup's salisbury "steak". Bob a little tiny white count. good good good. maybe this is the beginning if the up curve, lets hope and pray. lots of prayers for good news tomorrow on the bmb. i hope you rest well despite the fevers. its ok not to lap if you are feeling lousy, rest as you need. love dt

May 02, 2006 8:09 PM  
Blogger Carolyn and Jim Stuart said...

Hi Bob:

Hope today your "tushie" (or at least 1/2 of it) is feeling better after your torture yesterday.

Salisbury steak has a whole new meaning now! Both literally and figurativly speaking!

Will continue to keep you in our prayers for the best result from this biopsy! Take care!

May 02, 2006 9:24 PM  
Anonymous Anonymous said...

Take it easy Dr. Mazzola.. you know that old saying that "it's telling your body to slow down and rest"..not much is new here.. my father in law went home today after a 5 hr. delay at SF airport.. don't know why..it wasn't foggy..has anyone heard any more news on price william becoming engaged? did it happen? only about27 more days of school/work! yeah, then summer vacation..
Will continue the prayers for the good biopsy report..hang in there.. hey..why no tv for 35 days?? don't they have them in the rooms??? mdf

May 02, 2006 10:01 PM  
Anonymous Anonymous said...

Hi Bob and Mo,
Hoping those fevers are heading on out. Not kidding "chopped steak" or "Salisbury steak" is a gourmet item for my mom. Wow she can be easy to please.
Today we are celebrating the big "90" once again for mom at our company. All the employees, cake, a few speeches etc. Somehow I think this 90th will go on for ninety days.
Know you are in my thoughts and prayers each and every day, maybe even every hour of every day.
Love ya guys, hang in there Bob.

May 03, 2006 10:32 AM  
Anonymous jean rumsey said...

Dr. Mazzola and Mo,

Well I am away for a few days and all sorts of goings on happen. I do hope your feeling better at the BMB site. I doubt I would have made it through the first try let alone three. Hope those fevers take a hike. Lot's of prayers coming your way for great results. Let's keep those numbers going upward. Take care.

Lots of prayers,

May 03, 2006 1:35 PM  
Blogger Eileen said...

Greetings Mo and Dr. Bob--

Sorry i haven't posted in awhile but want you to know that you both are in my daily prayers--prayed especially hard for you at the healing mass so will be anxious to hear the results of the BMB.
I am not surprised to hear the horror story of 3 trys--I am surprised to hear that Bob reports it wasn't that painful. I can hear Debbie moaning in sympathy all the way over at my house! You really are the MAN!
Another good reason that I should check this site every day (besides keeping tabs on you), is because you never know what you are going to learn. For Pete's sake, I may never eat salisbury steak again! Kris-I will definately come to you with all my important questions--inquiring minds want to know!

Stay stronge and keep the faith--you will be home soon.
<3 Eileen

May 03, 2006 1:51 PM  
Blogger wanda cattalo said...

Wanda and Joe here. I just found out today that you are in the hospital. We knew that you were not working, but had no idea what was really going on. Mo, thank you so much for doing this blog so that we all can follow Bob's progress and also keep in close touch with him and you. We are hoping that each day will find you feeling better, a little stronger,with some magical increase in WBC's.

Take good care and know that we are thinking about you.

May 03, 2006 2:27 PM  
Anonymous Anonymous said...

Hello Dr Bob
We can't even begin to tell you how much we miss you and wish you well, please know that you are in our thoughts and prayers.
We are heading back down to Florida to see Mickey Mouse in a couple of weeks, this time we are taking our Mother's with us, both are in their 80's. This is kind of a late Mother's day trip.
Please take care and good luck with your test.
Sherry and Don Gerhart

May 04, 2006 7:13 PM  
Blogger deb s said...

your still in our prayers dr. bob, Mo we miss you so much. hope you're up to LOTR trivial pursuit. Kelsey is looking for a worthy opponent. it's like the rocky horror picture show for her group. haven't stumped her yet so you'd probably enjoy. keep up the fight!

May 09, 2006 7:33 PM  

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