Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Tuesday, April 11, 2006

Day 14 Admission Day 9 Chemo

Dear friends and family,

Well, when the cat's away.....I just phoned Bob(after phoning Deb and getting no answer), and he & Deb were visiting, sharing pizzelles and Russell Stovers. Seriously though, I am thrilled that Deb is able to go up to the 7th floor to see him. I spent the day running around Doylestown and Lansdale(car servicing, grocery store, post office, K-mart) w/ my parents, and I hate not seeing Bob for myself. But Deb says he looks good, a smidge more peaked and tired today. He had another infusion of platelets this morning, and he was pre-medicated w/ 50 mg. of benadryl b/c he had ONE hive the last time he got platelets. So he had a good sleep after lunch, so good that he missed Joe T.s' 3 attempted visits. He knew he was there though, b/c Joe left a PC magazine. And aren't you all so proud of Deb to blog from the family room PC on her floor. You go Deb, and you are funny too!

On a more serious note, Dr. Perle(the attending hem/onc now on rotation) told Bob today that he will probably have a BM bx(bone marrow biopsy) sometime next week. He said they are not expecting Bob to be in remission after this first induction round of chemo, that it very rarely happens when there is a history of underlying myelodysplasia syndrome(MDS). So as Bob says, we just have to gird our loins and expect a longer stay, which is really no surprise. Bob thought 4-6 weeks right from the beginning. Bobs' hgb was a tad higher today at 8.4, and his ANC is down to 150, the lowest so far. So we need to be very careful right now that he doesn't pick up any germs/infections. When he does his laps he now wears a mask and gloves. Bob still feels well enough for visitors, but please nobody who is sick or even has just a sniffle. The MDs say it's practically impossible to get away w/o any infections, but we want to prevent as much as we can.

Bob wanted me to thank everyone for all your kindnesses...blogs, cards, calls, visits, and gifts. He says they all make the stay more tolerable, and he is hangin' in there.

I wanted to say to Eileen...I can't believe you wrote that huge blog all over again(tho Deb says you're a fast typist). I would've said "fuged aboud id", and just said Hi. Thanks for the reminder about St. Peregrine. Gonna try to get to that, if I'm home tomorrow at a decent hour. And I'll see you Thursday.

I'm going to post Bobs' phone number and address again, since I've had some calls about that. Also please share this blog w/ anyone that you all think might want to write to Bob. I've a feeling we've only just begun a very long haul.

Room number_____7005 Rhoads Pavilion
Room phone____215-615-8116

Hospital of the University of Pa.
3400 Spruce St.
Philadelphia, Pa.
19104

As always, you have my thanks, as well as Bobs'. Please keep us in your prayers. So far, so good.

All our love,
Bob and Mo

11 Comments:

Anonymous Anonymous said...

Not much new today, Robert, house is filled with very old and very ill. Most think they are in restaurants, they are happy, and h and p is quick.
Fran Dunphy is big news. He now has four of five. Undergrad Explorer, Masters Villanova, Coach of Quakers now Owls. Missing only the Hawks. He is to be guest speaker at event in June and should be fun.
Hang tight.

April 11, 2006 8:44 PM  
Anonymous Kate Noon said...

Uncle Bob,
Well what can i say? Well I'm really am glad that I can come and see you over my "Spring Break", becauuse I'm staying over Reen's house. Sorry about the sweatshirts being so big we thought they would fit you, Reen says they'll srick in the dryer.
Love Ya,
Kate Noon

April 11, 2006 9:34 PM  
Anonymous Anonymous said...

Hi Bob and Mo,
Happy to say I am now back home safe and sound.Mom did well well on the trip home, but just let me say that West Palm airport has more whell chairs than any hospital in the world !!!! It was a challenge , at times I felt like we were all playing bumper cars. And please someone tell me why the security guards always stop ninety year old woman. My aunt, a mere 76 years young , must have been with security for a good twenty mintues before allowing her thru...go figure.
I have now caught up on all the news and delighted to learn Bob is doing so well. Now we just have to get brother Bill 100% healthy so we can visit. With all the food I have read about I am racking my brains already to think of something new and tempting we could bring Bob. ( just let me ask Bill he will think of something asap)
Okay guys I am exhausted but will be talking to you both soon. Love and prayers always.
Anne

April 11, 2006 9:36 PM  
Blogger Jessie said...

Ah ha! So I've been trying to call mom all afternoon/evening and now I hear she was with you! I'm glad you guys can make the best out of the situation - and that you have each other - and that Mo and Joe (aka Dad) have each other too. It certainly will help to have someone to trade entrees with at meal time and share contraband goodies with (hint on the cosmos). Thinking of you both! Mo, thanks for the great posts. I can't believe my mom blogged all those words by herself. Here's to technology - what a great thing! Keep your peckers up!

April 11, 2006 11:03 PM  
Anonymous Anonymous said...

Hey Roberto,
Here i am passing time in the lounge writing to you. Joe of course showed me how to do this (to get to your blog and mine). You should have come to bingo last nite. The pizza was GREAT. I could not eat my dinner tray so the pizza was very handy. Your door was closed when i walked by and i escorted a littlle lady from my floor so i wasn't alone. She was just dx. with leukemia and the nurses said she was having a difficult time and needed to get ou of her room so we sauntered up. We both won a game of bingo and took home hats. It helped pass the evening. I will be up for a vivit after my compaany leaves. Denn is visiting. Also i did get thru the soduko a bit easier.Not as quickly as you but better then before. see you soon. love deb

April 12, 2006 10:04 AM  
Anonymous Anonymous said...

I'VE CREATED A MONSTER. I MUST HAVE PUSHED THE WRONG BUTTON. WHY DID I PRINT THAT MANY BLOGS. SO SORRY REEN !!!!! DEB

April 12, 2006 10:06 AM  
Anonymous SantaC said...

Well I am sidelined in paradise and I guess I wont be visiting soon, I have a head full of junk! THe last dive was miserable, I could not get down. Sam is diving without me this morning and I leave to pick him up soon. The only thing that worries me more than squeeze in flight is customs. NOthing like security Anne but maybe I am safe, I am not old enough to be a problem. Hang in there, LOVE YOU BOTH.

April 12, 2006 10:25 AM  
Anonymous Anonymous said...

Well it looks like Deb made up for all the days that she didn't post on the blog to Bob..ha.. Joe, teach her about the enter button, will ya! Hoping today is treating you well also Bob..It's still raining here in "sunny?" california.. crazy how much rain we've gotten.. we are all off this week for spring break and spending most of it indoors!
Hey Mo,, how was Doylestown? sure do miss it at times.. Bob,, keep up the good work.. hope the rest of your time there goes smoothly..im off to the gym.. i don't loose weight anymore.. im just firming up my fat!!Patrick, my oldest , put 250 new songs on my ipod.. i'm probably the only frumpy mom there listening to rap.. but if it helps.... take care..mdf

April 12, 2006 11:22 AM  
Blogger Meg Noon said...

Uncle Bob,

Hmmm so the sweatshirts were too big??? Guess we need to bring you some free-weights to pump up those muscles. Wow, Debbie really likes to keep on posting... haha just kidding. Have a good day you two! Glad you guys can keep each other company. Love, MEG

April 12, 2006 1:46 PM  
Anonymous Anonymous said...

Bob.Stella and I, since we are on the blogger,we read all of the mail you get and the pouring out of all the love and care people have for you. Can you believe you are the only doctor that we looked forward to keep our appointments. even though all I ever got from you was hell.Keep up your spirit, and that should not be too tough with all the support you are getting Can't wait to visit you when we gewt the all clear from your Mo. seeya joe and stella

April 12, 2006 3:22 PM  
Blogger WT said...

Howdy Partner,
Hear yer riding the bed in Cowboy Sheets. Did the Mechanical bull arrive yet from Abercrombie and Finch? It's the latest design fully controllable and safe. All ages from 3 years to 70 can enjoy the experience.Hey, didn't know U R a Western Fan.
With's Mo's blogging, you sound in good spirits. Glad the first Chemo run is over for you and hope the first bone marrow bx shows remission. But should the first course not, I know you're handle the second course well. You're always a tough ole bird.

Many of your patients are asking about you and by now you've probably received many messages from them. If you're up for it, Will try to get down to see you possibly next week. This week, got company coming.

By the way, Louise L., told me to tell the "Little Shit to knock this stuff off and get the hell home." I'd like to second that!
Our thoughts and prayers are with you.
Bill and Em

April 13, 2006 7:36 PM  

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