Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Monday, April 10, 2006

Day 13 Admission Day 8 Chemo

Hi everyone,

Well, Bob will have his 7th and last bag of chemo(cytarabine) taken down tonight. His IVF's(IV fluids) were stopped this am, b/c he is taking in a lot of fluids by mouth, and he's no longer retaining fluid, w/ his weight having dropped to his admission weight. So all the ports on his IV line will be capped, and he'll be able to take a shower tomorrow. His whole right shoulder area will be wrapped in saran wrap, but at least he'll get to stand half of his body under the hot steamy water for a few minutes. He may be needing blood and platelets again tomorrow, but all his counts were in a holding pattern today. He still remains afebrile, w/o any signs of infection brewing yet. He's still eating well, but he wants to correct the impression that he likes the HUP food. He says he DOES NOT LIKE IT, but it is institutional food, and he doesn't expect it to be good. He feels that it's edible, and as Istari6(AKA brother Bill) says, he ate the liver that Mom, Catherine put in front of him, didn't he? I think what is going to get to Bob eventually, is that there is only a one week cycle of meals, i.e. ,every Sunday is beef tips, every Friday is fish, every Tuesday is spaghetti etc. Now, while he continues to refuse entrees from home, he has become amenable to desserts. He enjoyed the ricotta pie from Bev over the weekend(I thought it was fabulous, and sorry Santa, but there's no recipe...it's from a bakery), dug into homemade peach pie from our friend Yvonne today(also fabulous, attested to by Mo and Deb) and continues to enjoy pizelles(courtesy of cuz Candy) and milk as an afternoon snack. Sheesh, it's a good thing he's still going strong in the lap department...18 total per day, doing 6 at a time. So, overall I'd have to say that Bob is doing great, and all our mds' agree.

Now, I just want to throw some things out there that have been swimming around in my head, and to answer some questions that have come up in your posts. I miss the give and take that we FODs(friends of Deb) had going in Debs' blog, though it would be to hard to address everyones comments every night. First, to Eileen, this is absolutely a pecker-able zone. I should explain...when Deb(my friend who also has AML) was getting ready to be admitted to HUP for her induction chemo, our Scottish friend Nancy told her to keep her pecker up. So there was quite a lot of pecker chat on Debs' blog, and curiosity about whether Deb was actually in possession of a pecker(I'm glad my mother doen't have a computer),when Nancy got in touch again and told us definitively that a pecker was a beak or nose. Phew!!!

Secondly, Mary Day, the ice cream in Bob's mini-frig is unfortunately Jack and Jill provided by HUP, but Bob is even eating that. And no he has not lost any mustache hairs yet, so there are no moles peeking out at me. He does think however, that some of the hair on his head has fallen out...and he can tell this by???

To Santa, Matt didn't have time to pick up a DVD player for Bob before he came up, so Bob wasn't able to watch Bubba Ho-Tep which Sammy brought over. But he was reading Sammys' play when I left this afternoon, so more on that later.

Now, I'm gonna make all the other FODs who are joining us on this blog jealous, b/c I saw pictures today of Emma Grace Khouri, who is the cutest, sweetest little peanut ever. Jess and Walid, she is just adorable, and Mr.C has an absolute, devilish twinkle in those big blue eyes of his. God Bless you all.

I also wanted to say hi to my buds at MSC where I work, at least where I hope I still work. I miss you guys so much. I know you're w/ us all the time. Thanks for the cards, calls, blogs. I'm hoping to get in sometime soon if Bob continues to do well. Is this a CJC Friday coming up? Let me know.

Lastly to kmm darlin', Bob also loves cosmos, so we could continue along that vein. He also loves a dry, tangueray martini, and a good wine(red or white). Maybe I can talk him into a special guest posting from the family room PC at Rhoads, and he could chat about his favorite poison.

I guess by now most of the FODs will have read Joes' blog, so you know Deb is in Rhoads 6, for her 2nd round of consolidation chemo. I hitched a ride to HUP w/ Deb and Joe today. I think Deb was really expecting to come home after seeing her MD, but her platelet count rose dramatically to 180,000, so she was admitted. It will be nice to have their company even if it's only for 6 days. Now I know and so does Bob especially, what Deb meant when she used to say I wish Dr. Bob was here w/ me now. I will not be going down tomorrow, since I am finally going to get the 5000 mile check on our car, and I have to travel to Doylestown for that. But I do feel better, knowing Deb will check in on and visit w/ Bob tomorrow.

Holy cow, have I been chatty tonight? I think I'm just so pleased that Bob is doing so well w/ the chemo so far. We are not however, out of the woods, as Dr. Porter is so fond of saying. Please keep the prayers and good vibes going. As I said before, Bob just loves reading the blogs too, so keep 'em comin' please.

With love and grateful appreciation for all your support,
Bob and Mo

8 Comments:

Blogger Meg Noon said...

Uncle Bob,

Hmmmm so Reen didn't bring the cowboy sheets down??? Darn. You'll probably get to view (and sleep on) them soon. Glad to hear that you are still feeling okay. Have a good night and see you soon. We miss you.

xoxo MEG

April 10, 2006 10:12 PM  
Blogger Eileen said...

Hey Mo and Dr. Bob,
I always thought that you wrote the funniest, chattiest, most enjoyable blogs to our FOD Debbie. I'm pleased to see that your wit and quick sense of humor continues with your new writing assignment!! Bob is indeed lucky to have you--you do have waaaay more words that Joe could ever dream to have in a lifetime!!! So glad to hear that Bob continues to do well. We all wouldn't mind if he skipped some of the alergic reactions that Deb seemed so fond of, and quickly followed Debbie into remission. We could set up a little friendly competetion to see who could do more laps (not Debbie-laps!), who could get through consolidation chemo first, who gets the stem cell transplant first, who could brave the dreaded biopsy without whining, etc. Maybe we would even place some friendly bets....

Anywhooo... for all you Catholics in the Lansdale area, I want to remind you to mark your calendars for Wed. April 26. There is a healing mass at Corpus Christi at 7:30--it's also the last week of the St. Peregrine novena (6:30). I've been attending the novena along with Mary. If you can, please try to attend the mass--I think it will prove to be a very worthwhile experience. At the top of my prayer list is Bob and Debbie.
Let's all keep our peckers up--and go, Bob, go!!
Eileen

April 11, 2006 10:20 AM  
Blogger Eileen said...

Dear Mo (and Dr. Bob),
You always wrote the funniest, chattiest, most informative and amusing messages to Debbie, and I'm glad to see that you are just as witty and fun to read in your new writing adventure--and now you have center stage to boot!!!! Keep up the good work!!
Glad to hear that Bob continues to be doing well. Hopefully he will soon be joining our friend into remission. I was thinking that maybe we can get a little friendly competetion going between him and Deb. Perhaps we can see who can lap the most (NOT Debbie laps!). We could waiger some friendly bets on who will get the most rashes, or who's counts can recover the fastest. Just something to help past the time...
FYI for all Catholics (and anyone else who would like to attend) within reasonable distance of Lansdale. Wed. April 26 at Corpus Christi at 7:30 is a Healing Mass. It is also the 9th week of the St. Peregrine novena that Mary Gerhardt and I (along with a lot of other people) have been attending (6:30). Anyway, Bob and Debbie are at the top of my prayer list, but I really do believe in the power of prayer, and the more to show up, the better.
Hope Bob continues to do well, and that you (Mo) are taking care of yourself.
Eileen

April 11, 2006 12:20 PM  
Blogger Eileen said...

Alright, what gives?
I tried to post the first message, and got an error message and thought it got lost to the cyber-winds.
Soo, then a while later, I tried to remember what I had said in my first message, and posted a 2nd time--only to discover that the 1st one actually had been published (I think).
Sooo, I tried to delete the 2nd message--but it wouldn't let me!! Go figure. So here I am a 3rd time trying to explain myself.....

April 11, 2006 12:28 PM  
Anonymous Anonymous said...

Holy cow Mo can you type! You have a bizillion more words the our friend Joe. You are so damn funny, why can't I be funny when I post. I thinnk that I need a cosmo to be funny. I will have Joe bring down a shaker full of them tomorrow.

When Bob is better, we will have a sleepover cosmo bash to celebrate our numbers climbing.

As Eileen suggested, a little friendly competition might be good, however, I think I would lose. I did do 12 laps yesterday, but more so to say that I did them than wanting to do any -- and they were my kind of laps.

I definitely would win in the whinning department. I start whinning as soon as they say "drop your drawers." Since I have sworn off bad words, I will have to bite a bullet for the next one. But 4 marrows in 4 months is a lot for any butt.

Last but not least, in the food department. Bob's kind understanding that because the food is institutionalized,it is allowed to be cold, grey and tasteless, does not cut it with me. I can eat food from home, but not from this place. But I agree that homemade deserts were the best.

Yvonne your peach pie was the best. I am getting chemo right now, but will go up to visit with Bob soon. So glad that you are doing well.

Love and prayers,

Debbie

April 11, 2006 1:04 PM  
Anonymous SantaC said...

If you want to know what survived hurricane Ivan, I can tell you it was the lobsters!! I have never seen so many on a dive. I would love to bring you one Bob but they are out of season. They are doing beautifully though and I am glad to hear that you are too. This morning my second dive was a bust as my ears are clogging. Sam is really scared now, I am going shopping tomorrow. Keep up the laps, it raises spirits and shrinks waistlines. So just how many hairs did you loose anyway? Love you both.

April 11, 2006 1:31 PM  
Anonymous Anonymous said...

Mo.. your blogs are very informative and i feel like i am sitting next to you talking with you as i read them.. glad that "What about Bob?"is doing so well with all of this.. he is a trooper also.. Eileen, don't worry about sending 3 messages at once.. some of us need to read things repetively to "get it".. and by the way..Meg.. cowboy sheets??are we leaning towards the Brokeback look??
Deb, your typing has improved so much..i enjoy hearing from you on Mazzola's blog also.. hope you do well with this consolidation round.. i mentioned before that you should make sure your gown is tied tightly when lapping him.. maybe now you should let the breeze flap it open.. might be a cheap thrill.. goodness knows you all must need some somehow..
Well,, again. so happy that your feeling better..today is opening day for the Red Sox so i need to go get my errands done in time to see it.. ttly...love ..mdf

April 11, 2006 1:56 PM  
Anonymous Anonymous said...

Bob,
Ive been out of commission as my computer has been down...but I have now caught up on events. I refuse to comment on Deb's pecker...but my Deb and i hope you are feeling well considering all the stuff you are getting infused. Our multidenominational prayers are with you.
Rich &Deb Friedman

April 11, 2006 3:47 PM  

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