Day 19 Admission Day 14 Chemo
Happy Easter to all,
And it was a Happy one, despite where we celebrated it. As Patty said we were together, and that's all that matters. Meg and Kate were also w/ us. Tom and Anna(my bro. & sis-in-law) were at home cooking dinner, that is until Tom sliced his finger on the mandoline. After a trip to the ER(instigated by Bob to Toms' chagrin),the ham dinner came off w/o a hitch. In fact I am blogging from their house. The girls and I were w/ Bob from 12-5p, and we really had a nice visit. Megan kept us entertained w/ tales of her pre-schoolers at Grandviews' day care. And Kate just always keeps us entertained by being Kate. It's good to see Bob laugh. His hgb was 8.0 today, which is not much of a jump up from 7.6 yesterday after one unit of blood. So he got another unit today. He also got another platelet infusion as his count was down to 10,000.WBC is 0.4 and ANC is 0.
He was still tired today, but didn't feel "wiped out" like he did yesterday. He's had no fevers today, but also received tylenol twice before the blood and platelet infusions. Dr. Perle was in this am and said the area on the CT scan is very small, and as long as Bob isn't having other symptoms(cough, SOB, low pulse ox), they would just maintain him as is. So I have to say that he continues to really hang in there, even w/ these chemo after-affects cropping up. He didn't receive the blood until late afternoon, so if he felt better this evening he was going to go for a walk. He put off his laps today b/c of the severe fatigue, and he does actually get a little SOB(short of breath) with exertion. He ate well today...chicken and turkey, no ham...although he says his taste buds are starting to become affected. I've got ham and scalloped potatoes(Tom says he rinsed off the blood before they cooked them...yeecchh) to take down tomorrow along w/ some of Annas' homemade rolls.
I suppose you can tell by this blog, that I am not as worried about Bob tonight as I was yesterday. Bob forgot to ask Dr. Perle if he still planned on doing the bone marrow bx. tomorrow. His nurse today, Angela, said that was still the plan, but Bob wondered if getting the blood would affect the marrow. We'll find out tomorrow. I'm going to go down either way. But please send all your positive thoughts, prayers and good vibes in HUPs' direction tomorrow, just in case. We love you all, and thank you for the unwavering support. Hope you all had a wonderful holiday, and I'll write tomorrow.
All our love,
Bob and Mo
posted by mo @ 4/16/2006 08:22:00 PM
11 Comments:
Happy Easter Bob and Mo! Glad to hear you all had a nice visit today and that Bob is able to enjoy some Easter feasts! Lots of positive thoughts are coming your way from us always - but especially tomorrow. We'll be thinking of you and hope the bone marrow biopsy goes well.
They're coming your way.. sending those ca.(california) vibes..... Bob (Robert),, glad you are acting like a pt.(patient) at times...jt(just teasing) you Mo(Maureen).. i actually really like the way you abbrev words then write them out so we all know what your talking about.. Dr. Mazz.. don't push yourself too hard, but keep up the fight!!Good luck tomorrow with the bone bx.. mdf
Happy Easter!
Matt here writing during his wonderful lunch at 5 in the AM. I tried to get a hold of dad yesterday but to no avail. Ah, the joys of working the odd shift. Its great to hear that dad is feeling a little better. My fingers are crossed for tomorrow and I will give a call then to see what happened. All my Love!
Hi Mo and Bob,
Whew! Finally caught up now that I've read all the entries since last week. I'm so glad that you behaved yourself while we were in the OBX Bob! I knew you would hang tough. Thought of you every day...I know you love it there also. It was a little chilly, but the kids actually went in the water(which was only in the 50's).
Happy Easter! We survived mass with the buggers STANDING! I'd like to tell you they behaved, but my evil eye isn't nearly as effective as it was when they were little (now they think it's funny).
Mom had her annual Easter reunion Sat. with all (50+) relatives...good Lancaster Co. cooking! Mom and Dad send their love and were asking how you were making out. Of course Dad had a few other messages too, but I can't print them here!
Will be thinking of you today and hoping all goes well with the bone marrow bx.
Love, Kim
Hope all goes well with the bone marrow thing. It sounds greusome but you are so resilient. Sounds like Bob will qualify for the best patient who was ever a doctor award. Keep it up.
Hey Mazzola's,
i thought i would be original and steal sarah schneider's joke of the day theme. bob, my biggest supplier of jokes also happens to be one of your biggest fans. conveniently, after agreeing with myself to welch blog jokes, i open my emails, and coddington has sent me 4 jokes. this will suprise you not one bit bob, not one of them is suitable for blogging.
i will keep you in all of my thoughts and pray for good intentions. xoxoxo km
and one more thing, if i were still having children, i would definitly welch santa's name. i think i am still going to do it, i'll just pick one and rename him or her. maybe, i'll just attach the name to mary since she's the youngest...santa mary. mary santa. i love it.
Hi Bob and Mo,
One more name to add to the good vibe list...needless to say the prayers are attached to the vibes.
Yesterday was wonderful with my sisters and their husbands, but my knees are rebelling today telling me I was on my feet too long.
I will give a call down to HUP later today.
Love and Kisses to you both.
Anne
Maureen - this is your sister-in-law Anne's sister, Jane Held, just letting you know that Bob and especially you, remain in our thoughts and prayers. Please do give him our best again. Maureen, you continue to amaze me with this blog you have created. I admire your dedication and your upbeat sense of humor. That's the secret of keeping your sanity in a situation like this, I think. You have to keep that sense of humor going. It also sounds like you have a lot of family support and that, too, is so very important. I hope you're taking care of YOU while you're taking csre of Bob. "Take care of the caregiver"! Hope all continues to go well. You're in our prayers. Jane and John Held
Hey Dr. Bob, Deb here sending you good thoughts and hoping you are resting after the bone marrow. I hope you got some good drugs to see you thru the worst of it. And i am so thankful that the area of pneumonia is small and that your strong constitution will hold it at bay. (and the voiraconozole).I was thinking of you all day yesyterday and today with the biopsy looming.I spoke with Mo
o and she said you sounded stronger on the phone today so that made me feel better. As long as you are ok then i'm ok. Can it already be 3weeks on Wed. that you are there at Penn? We all can't wait for you to get home into your own bed and shower and snuggling with mo. till then all our love and prayers. DT
bob,although you may not hear from us every day, not a day goes by that we don't breath a prayer for you and mo to help get youall thru these tough times. Ann and Jim folkes dropped in to see us last Sat. Ann also ent thru the mill and has a way to go, but her spirit is up kept with the support of Jim as Mo does for you. It must be terrible to not have a spouse as we do. We will continue to look for the news to improve as time goes on. stay upbeat joe & stella
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