Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Friday, June 16, 2006

STILL NO RESULTS

No bone marrow results that is. And at this point Bob says he's not asking anymore, he'll just discuss it w/ Luger on Tuesday when he has a repeat BMB. I said yeah, if they actually have the results somewhere. I can tell you that his wbc's were 2.1 yesterday, and the neutrophils were 400. Higher, but not high enough to be off house arrest, as Deb calls it. The hgb and platelets are both stable, and he doesn't need any transfusions.

That's all she wrote for now. My parents and Kate are here,(don't worry, nobody has so much as a sniffle) and we're going to watch "Ladies in Lavendar" w/ Dame Judi and Dame Maggie. That is Judi Dench and Maggie Smith are in the movie, not in Kulpsville watching with us. Ha! As if you thought otherwise. Anyway, I kicked Kate off the computer so I could write this, and I must let her back on.

Did want to thank SJS for the kind words, and give my wholehearted concurrence. I'm not sure any of us realized when we were living it, just how rare and special and strong, all the friendships we forged would come to be. I too feel honored and blessed to be part of such an exceptional group. And I just want to tell Suzanne in case she's reading this, that if you need anything at all, please call. Bob also wanted to thank everyone for all the love and well-wishes you sent to him on Wed. night.

So, that's about it. Thanks for all the support and keep the prayers going please.

All our love,
Bob and Mo

7 Comments:

Anonymous Anonymous said...

Hi Dr. Mazzola,
I hope you are allowed to be out and about soon. At least you can go on the deck, that must help a lot. I haven't made a post lately, so I thought I would let you know that you are still in my prayers. Linda V.

June 17, 2006 7:26 AM  
Anonymous Anonymous said...

Hi Dr.Mazzola, and Mo.. fun on the deck! It's been around 100 degrees here.. mark had a baseball tournament today at U. of SF which was nice since it was much cooler there.. about 85! tomorrow he plays at st mary's college.. Patrick has been hanging out with friends and swimming.. last night he and a bunch of friends went out for ice cream then tp'ing.. can't stand that..i think it's going to be a long summer.
We had a very sad week, had to put our dalmation down .. he was almost 10 yo, but was diagnosed with kidney disease and wasn't eating anything or keeping anything down for the last couple of days/weeks...this was our dog that would go out and "hide "behind the trees and bushes during the winter when they didn't have any leaves...i would say"where'e Pongo?" and he would get all excited.. he also licked a whole in the wall cause they used vanilla in the paint.. plus, i swear he was the only dog i knew that could gain weight on his walks.. he always found something to eat!Anyway,, it really was a gut wrenching decision, but i didnt' want one of the boys to come home and find him.. or have him suffer too much..so we made an appt. and he didn't even come down stairs for a walk that day.. the dr. had given him 3 days about 3 months ago.. so , after many tears from all of us. i took him to the vet after a drive around with mark and him.. and damn if that dog didn't go marching into the vets all happy and healthy looking! The dr. asked "why do you want to put him down?" then he read his chart and heard about the n/v, seizures, lack of enthusiam and said it was time! So hard watching your teenagers say goodbye to their dog(we still have one now) i stayed with him while they gave the shot.. maybe 5 secs.. very fast...so that is my sad story for the week..had to share it with you.. feeling kind of guilty, but think that's normal ....
so, on your tuesday, i wish you luck for the next , and i repeat, next bmb.. mo, follow them to the lab with it..
hope you are feeling stronger everyday .... enjoy your sunday..mdf

June 17, 2006 10:09 PM  
Anonymous Anonymous said...

Hey Mo and Bob,
sorry everyone had trouble blogging but mo, did you really ask me what was wrong? ME? who can't correct mistakes and spell correctly? anyway i hope it is back up and running. i see blogs from my dear buddies today so i think it's fixed.
I agree with the group bob, no more dropping of the draws. and getting the mother of all sticks unless Penn finds the results of the last bmb. something is amiss down there. today kathy drew my labs and they were picked up shortly thereafter and somewhere along the way they could not find the blood sample. kathy had to come back at 5:00pm after she was home (in boyertown) and draw new labs. i was sooooo upset. i thought we could wait till tomorrow but i was not feeling great. of course no word from penn tonite. i felt so bad for nurse kathy driving here twice in one day. but somehow the lab is having trouble. better fix it before my next adm. we had a great time at the shore with the babies. they are both just too cute. they never run out of energy but make me laugh all the time. great medicine!!!! well robert GOOD LUCK TOMORROW. hit them with your cane as carolyn suggests. couldn't hurt and maybe will help. i will be thinking of you. love deb

June 19, 2006 10:23 PM  
Anonymous Anonymous said...

mo and bob,
this is a P.S.... thank you sjs for the kind and true words. we are a strong group and had a wonderful time working together.a very comforting part of my life thank you for reminding us of special times....dt

June 19, 2006 10:27 PM  
Anonymous Anonymous said...

To MayDay,
I am so sorry about your puppy. must have been so difficult for all of you. we are still not over Simmie being put down while i was at Penn. i still come home and thinki need to run in and let her out. but she probably is much happier in doggie heaven and feeing better. you did the right thing for him, but all the same i'm sorry. thinking of you all.
love debbie

June 19, 2006 10:31 PM  
Anonymous Anonymous said...

Hey Dr. Mazzola,, good luck tomorrow, sounds like the good luck should be going to the lab!! I hope they have all their runners and techs in line tomorrow.. and, can deb ever think of herself??? that was nice of her to say something to me about Pongo.. thanks deb..
well, tim and mark are off to omaha tomorrow for a tournament and to watch some of the cws.. they should have fun, have to get patrick ready for his film camp at ucla which he'll leave for on sunday.. i am having a showing of Brokeback Mt.tomorrow since they don't want to watch it!don't know why??
will be thinking good thoughts for you all tomorrow and continuing my nightly prayers.. hope to hear good news soon... mdf.. ps. you use a
cane now? or is it just for the bad knee?

June 19, 2006 10:51 PM  
Anonymous Anonymous said...

How did it go today? Im wondering if Mo is going to give up a update on your day.. hope everything went well.. mo, do you like my passive aggressivness?mdf

June 20, 2006 6:36 PM  

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