Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Thursday, November 22, 2012

Happy Thanksgiving!

Was hoping to write that Bob And I were enjoying a nice Thanksgiving together here at hup ....unfortunately I cant do that. He is more sob today and desats down to 90% w/ exertion. Legs are bigger and tighter as are arms, with the rt.being much larger,and his neck and head veins look like pipes. I knew this was going to happen when he left the cardiac service. He hasnt been weighed or had accurate I & O's done either!!!! And then the nurse says his lasix was decreased to once a day!!! Hello!!!!!! Get the dr.in here please....she(resident) doesnt think he looks any different than yesterday. Here in Rhoads we are all worried about respiratory infections...viral, fungal, tb and he's been swabbed and cultured up the whazoo and been put on contact isolation!!! What BS. Need I say I'm sitting here sans mask and gloves! He doesnt have coxsacchie or rsv or tb. He has constrictive pericarditis which took over a week to get under control and they let him slide backwards to that point in 2 days. Do i sound pissed?? Also his knees and toes are cold and purple....they've been looking for a doppler for an hour. Anyway I was told that Bobs creatinine is 1.4 today so thats why lasix decreased. I told her that Dr.Hirshfield Bobs cardiologist told us on Sunday that they would let cr.go as high as 1.6 since Bob was more confortable with less fluid and they'd keep him on dry side. Then she says it could also be d/t bactrim which ID said could be stopped. So stop it and give him the damn lasix!! Mother of God! I may sleep here tonight! Tomorrow Interventional radiology is supposed to se Bob so they can decide if they can get samples of pleural fluid from effusions which are apparently worse. Also had new nodules on latest ct scan but no on wants to bronch him. Off to flog a nurse or dr....jk!!! Not really! Off to make sure he's getting more lasix and the damn doppler check of his purple toes! With loving thanks for all of you, Bob and Mo


Anonymous Karen Bennie said...

Oh Dear Lord..just when u think it can't get any worse...well thank God u are a seasoned nurse and know what to do and what to look for..u are his advocate and I pray so hard u get him to at least a comfort xone..well Happy Thansgiving to u and Dr Bob, thanks for the update..and I will keep the prayers coming your way..take care of yourself..and especialy Dr Bob!!!

November 22, 2012 4:51 PM  
Anonymous Anonymous said...

Ughhh oh no. Stop and breath for a second, and just take 10minutes with Uncle Bob to try and enjoy 'your special thanksgiving'. Thinking of you, and hopefully the lasix makes him more comfortable. MEG

November 22, 2012 5:03 PM  
Anonymous Anonymous said...

I think you need to move in. Then you can smack em silly when they before they goof up

November 22, 2012 5:12 PM  
Anonymous Anonymous said...

It is good he has you..imagine if not! Hope you can get things accomplished and he is doing better :)

November 22, 2012 5:14 PM  
Anonymous Bonnie said...

Hi Mo and Bob. Geez,so sorry you are having these troubles-you kick buns Mo!! Lifting you both up in prayer. Hope you both get some rest tonite and that tomorrow will bring better options an Rx. May you both feel all the love and prayers being sent your way. Bonnie

November 22, 2012 7:42 PM  
Anonymous Anonymous said...

Thank God you are there to fight the battles!!!!
This explains why he sounded sob when we called today! Only talked a few moments because we could tell he was having difficulty! Hang in there, both of you !
Jim and Carolyn

November 22, 2012 10:14 PM  

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