Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Thursday, October 12, 2006

We've got matches!!!!!

Hi everybody,

Well, we received great news at Dr. L.'s office on Friday. Bob has more than one complete match on his bone marrow donors. There is one final blood test to do, and than they will decide. Depending on the donors schedule Bob could be admitted mid-November to early December. It takes about 2 weeks to prep the donor once they've agreed. We are beginning to get info in the mail, and we will have to take a class at HUP sometime before Bob goes in. There are very many restrictions placed on transplant pt.s that we need to know about. And it all sounds quite scary, truth be told. So, we're back to our "one day at a time" mantra.

There's a lot of pre-adm. testing that Bob has to have done...labs, heart scans, pulmonary function tests etc. He will also have another bone marrow biopsy done in early November, to make sure that he is still in remission. We thought that he was going to have it done last week, but it wasn't close enough, time-wise to the transplant. Bobs counts are hanging in there...low, but stable. He still battles muscle and joint pain, especially in this rainy weather. But overall he's a tough cookie and does his best to cope. So that's about it on the medical front.

I want to thank all the generous donors who have supported Megan in her Light the Night walk. She has raised over $1000 for the Leukemia/Lymphoma Society so far. Meg and I have tried to thank most of you by e-mail, but I don't have everyones addresses, and some have given anonymously. So thank you from the bottom of our hearts. It means so much. And there's still time to give if you've just forgotten or put it on the back burner. Meg and her gang are walking this Saturday evening in W. Chester. the website and instructions are listed in the previous posts if anyone is interested. Sorry, I'm like a dog w/ a bone I know. But that will be my last plea!! And thank you, again!

I think that's about it for now. When Bob goes in for the sct, it will most likely be another long admission, and I'll be back to blogging more frequently w/ updates. It's also possible that he will spend Thanksgiving, Christmas and New Years at HUP, so I'm counting on you guys to help keep Bob occupied w/ your blogs. You've all been so wonderful thus far, between calls, cards, blogs, meals and most importantly your prayers. We know we are blessed to have you all in our lives, and thank God for each and every one of you.

All our love,
Bob and Mo

17 Comments:

Anonymous Anonymous said...

the news is wonderful, and hope it continues. Joe 7 Stella K

October 12, 2006 9:18 PM  
Anonymous Anonymous said...

Hey, Bob:

Hello, it's Lee-Lee. Miss our "afternoon delights" now that Mo's back in town to change your dressing. Oh, well. When's Bev cooking dinner again?? I haven't had a good meal since Nurse's Weekend. Geeezz!!
Great news about the donor match!! Beef up for the long haul. We'll be behind you all the way. Love, Lee Williamson

October 13, 2006 12:04 AM  
Anonymous Anonymous said...

So glad to hear the news! We continue to think about you guys each and every day...hope the next few weeks go as well as the last few!
All our love,
The Booth Family

October 14, 2006 9:31 AM  
Anonymous Anonymous said...

..This is great news,, get in, get it done, and get home in time to kick back and watch the superbowl from your own couch! So happy that you have been able to be in "cruise control" for the past few weeks, and hope it all goes well in the weeks to come.. love,mdf

October 14, 2006 7:48 PM  
Blogger Carolyn and Jim Stuart said...

Hey Bob:
That is just great news that you have more than one donor!!!!
Hope to see you and Mo on Wed night..maybe it should be Mexican train this week!

October 15, 2006 9:30 PM  
Blogger Linda Sheets said...

Dear Robert
What great news for you and Mo. I hope mo's father is better. I leave for LV on Wed with Mom for a week. I have a print out of all the times,places,buy ins at all the casinos, wish me luck. Laura is doing well except for her roomate, she is a list to be reasigned as soon as a room comes available. Let you know when I get back Love Linda

October 16, 2006 5:54 AM  
Blogger KMcLay said...

Hey Dr Bob and Miss Mo-

Terrific news on the matching front. So glad to hear that your counts are hanging fire while you go through the pre-game warmup. Sorry to hear about the aches and pains you are enduring tho. Maybe you should try some gin-soaked raisins?

Hope you are enjoying the football games and the idea of you being all done with your tx and watching the Super Bowl from the comfy confines of your own couch is a good one!

Think of you often and am continuing to send good vibes and prayers your way.

Cheers - K

October 23, 2006 9:21 AM  
Anonymous Anonymous said...

Stella and myself talked to Bob on friday the 27,and just to hear him was good. It boosted our morale and we hope his outlook is as good as he came across. Bob,we really believe you will come out of this okay and forever you will be more thankful for life than you have ever been. You know my history,so it, so my words are not just whistling in the dark. We will keep in touch joe & stella kraynak

October 27, 2006 11:22 AM  
Blogger ~~~dee said...

Hi Bob and Mo. Glad things are on track. Let's get those donor's beefed up and get going with this thing. Enough already!!! Love to you both, ~~~dee

October 27, 2006 8:47 PM  
Anonymous Anonymous said...

I'm really excited about "the matches", when I first read it I thought you were talking about starting a fire ( It's the drugs ,I can't help it)..what a dope...anyway ,of course it's great news,albeit a bit scary,but Bob, you are a tough cookie ,and I have no doubt you will do just great!!...We have had some afternoon fun with Reen gone (keep em guessin),that Holly and Lee Lee are cut ups for sure...I'm ready with my trusty Paella pot for any Hankerin's..let me know....take care ,and lots of love and hugs:)Bev

October 29, 2006 10:40 PM  
Blogger Joe said...

Hey Mo and Bob, Finally able to sy hello and send my love and congrats on te donor. A long haul but i am confident you will be ok. I feel it in my bones and all the folks that went in with me did ok and were out in 4 or 5 weeks. I'm hopin you will be home for xmas. if they can get things movin for you..Anyway Mo says you are out and about and thats great. I'm so happy you are feeling ok. Lots of love and kisses coming your way now that i'm back to being semi-concious. love Deb

October 31, 2006 8:17 PM  
Anonymous Missouri Hello said...

Bob and Mo:

Greetings from Debbies Missouri family. Just happened to be at Aunt Angies and checked in on your progress as she has you listed on her "favorites".

I'll say that is great news. More than one complete match. We send our best and will keep you in your prayers as we know the road ahead will tough.

Take care...COD Eileen and Aunt Angie

November 03, 2006 9:06 PM  
Anonymous Anonymous said...

Just saying hi again and we should go out to eat or something ..it was such fun and goodness knows we need more fun... maybe next week ??? Bob ,you look great and the more I see you the more sure I am that you are going to do great at HUP..you have this wonderful attitude and that is what will get you through...my heart is with you and of course tons of prayers ALL the time (throughout each day and nite)..I say the Chaplets and Rosaries and the Dolores every day many times and you are always at the front of my brain with Debs and My Jen....All WILL BE WELL!!! I just know it..Love you XXOO :)Bev

November 06, 2006 8:39 PM  
Blogger KMcLay said...

Hi Dr Bob and Miss Mo-

Just wondering how things are going and thought I'd check in with ya. Hope everything is proceeding apace with the tx and that your're getting your GAME FACE on Dr. Bob. Also hope you are chowing down and bulking up for the big event. Want to make sure you are up to your fighting weight!

I'm keeping you in my thoughts -
K

Mo-hope things are well with your parents, too.

November 09, 2006 8:04 AM  
Anonymous Anonymous said...

Hi, Dr. Bob and Mo,
have not seen any updates for a long while - we hope everything is "on schedule" and the marrow transplant will soon take place. Please, post a few lines on the status quo, when time permits. Aniko is ready to cook you another dinner whenever you desire. We hope for the best and keep you in our prayers.
George and Aniko

November 10, 2006 8:46 PM  
Anonymous Anonymous said...

Hi, Bob,
here is something to cheer you up:

Roman general returns from a campaign and entering the house, he demands from the servant: where is my wife? The servant answers: she is upstairs, in bed with arthritis. The general screams: get that Greek out of my house!

Petronius
Arbiter Elegantiarum

November 10, 2006 8:51 PM  
Blogger KMcLay said...

Hey Dr. Bob and Mo-

Just wanted to let you know I'm thinking of you guys. Hope all is well and that you have plans for a nice Thanksgiving.

K

P.S. good one, Petronius.

November 15, 2006 12:38 PM  

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