Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Monday, July 24, 2006

Another Clean BMB

Hi everyone,

Well, it's been some time since I've blogged. I did try earlier this week and this am, and both times the blog was down for maintenance...go figure...just my luck. Anyway, just wanted to let you all know that the last bone marrow biopsy that Bob had done also showed remission...so that's the 2nd leukemia-free BMB. Dr. L's office called last Wed. and said could we come down tomorrow, meaning last Thursday. No reason was given, but we had trouble obtaining Bobs' labs last week...never got Mondays results after numerous phone calls which was unusual....so of course our imaginations kicked into overdrive, thinking the blood work showed something negative. Thankfully we were wrong and Dr. Luger just wanted to see Bob since it had been about 2 weeks. What you all don't know is that the next phase of treatment for Bob is a mini stem cell transplant. Dr. L. discussed it briefly with us, but we never wrote about it so we could speak to Bob's family first. His brother Bill and sister Santa have had blood tests drawn to see if they can provide a match for the stem cells, but we won't have the results for about 2 weeks yet. There's a 25% chance of a sibling match. If they don't, than the national bone marrow registry will be used. I don't want to get into all the details of the procedure right now, but it of course carries risks, the greatest of which is rejection. So, in the coming weeks I will be asking for those stepped up prayers again...though as i've written before, I know you are all still remembering Bob in your prayers, even if the current situation is stable.

And, once again, our dearest friend Debbie, in her own words..."will have to blaze the trail", as she will be admitted for her mini- stem cell transplant(heretofore known as sct) on Aug 2. So, please keep Deb in your prayers also, and if anyone wants to follow along on her blog, and send her well-wishes, it is called....debbiesjourney2recovery...and you can find it by going to the "search this blog" box at the top of this page, and typing that in. This hospitalization is going to be another long one...6-8 weeks, and I know she will appreciate any get-well blogs and wishes.

On a lighter note, Bobs' counts are coming back up, and he's doing better w/ the neck pain since he's staying on the meds for that. We've started going out to dinner and to run little errands more often, so life is getting a little more predictable and "normal". My niece Kate has been staying w/ us for a few days each week, and she always brightens things up...not to mention that I put the kid to work when she's here!!! But she's always willing to lend a hand, and her and Bob get along famously. On a sadder note, "my Meggie" is moving back to West Chester this weekend. She is going back to school for education, and will be working as a teachers asst. I hate to think of her not being close...especially when Bob goes back to HUP. I will miss her sorely!

So, that's all the news for now. Actually i could write a lot more, but I don't want to tax MDF too much. Ha! as she would say. So please stay in touch. Bob got lots of belly laughs from that last set of blogs...especially Cozzs' Nonas' wisdom. We thank you for all you love and support, and send our love in return...Bob and Mo

13 Comments:

Blogger Meg Noon said...

Geez Reen, West Chester is only 45 minutes... maybe an hour with traffic... See ya for dinner this week

July 24, 2006 6:38 PM  
Blogger Jessie said...

My goodness - what great news about the clean BMB! And a mini is in the cards for you? I've read lots of great success stories on mini-SCT - you will be in fine company! I'm so glad to hear things are well - I was a bit nervous when mom told me you guys headed down to HUP last Thursday unexpected. I will be anxious to hear about the HLA-testing results. Fingers are crossed that one of the sibs is a match! Lots of love.

July 24, 2006 10:05 PM  
Anonymous Anonymous said...

We're all hoping for a sibling match- it seems lucky (lucky?) to have a best friend going through all of this at the same time...glad you and Debbie have each other! Keep those positive blogs coming, we love hearing them!
Our thoughts are with you!
The Booth Family

July 25, 2006 8:10 AM  
Anonymous Anonymous said...

so happy for you dr. mazzola, so strange the way you and deb have been having so much in common..wish so much it was just taste in clothes, or food, but im sure we'll all get through this next stage also...mo, know you;ll miss the spontaneous "drop ins" by meg..but she's not moving to guam.. so im sure you will get to see her occasionally..
made it through the week in temecula,ca... was 110 degrees there , mark played in the bb tournament and was the catcher so he was plenty warm.. went to ucsd.. pretty campus, boys met tony gwynn..now back here to another tournament in 107 degrees..3 games yesterday... you would think they would postpone it or something..ha, Patrick took care of the house for the last week, did a good job, only forgot to take out the trash so you can only imagine what that was like after a week of heat ..... anyways.. keep getting better.. are you going to have a meeting also with the dr.s to go over the mini stem cell procedure? Good luck with the HLA-testing(got that from jesse).. i'll keep my prayers going..mdf

July 25, 2006 7:17 PM  
Anonymous Anonymous said...

Hey Mo and Bob, Gee it's nice to get a good newsy blog. I'm so glad you are out and about in this heat enjoying everyday life. More importantly, i'm so glad you are eating out alot. My favorite passtime. We all should head into sct with a "few" extra pounds in place for when we lose our appetite. I do love my Dr. Porter for encouraging me to "keep eating" even though i am tipping the scales at........PLENTY.
MDF you are so darn funny !!!!!i picture you running around with your hair blowing in the wind chasing these boys from tournament to games to tournamets. I bet you are not sitting around watching TV unless its ESPN. And miss meg GOOD LUCK at west chester!!! we will all miss you.Sleep tight guys!!!! lol deb

July 25, 2006 9:12 PM  
Anonymous Anonymous said...

Dear doctor Bob and Mo,
sorry for the long silence - we were away for a while; George had a conference in Minneapolis, lots of preparation, four presentations, lot of mingling and science talk. Had some fun, a few dinners with friends, did a bus tour of the twin cities, visited the art museum, etc., a busy time but we found the town delighfully vibrant, clean and inviting.
Now, we are back for a short time, then a brief shore vacation is coming up - never a dull moment.
Saw the blog news, glad to see the overall progress you are making, and hope for a good tissue match for the planned stem cell transplant. Mo, no need for concern about the dishes, Aniko will pick 'em up when she delivers a batch of goulash she is thinking about making for you. Will call to agree on the time. By the way, have you ever been to Victor's Cafe in South Philly? All the waiters and waitresses sing opera - and they have terrific talent, too! Aniko was there with friends and highly recommends it.
Well, keep the faith and keep on truckin' - our prayers are with you.
George and Aniko

July 26, 2006 9:18 PM  
Blogger joan hurd said...

Our thoughts have been with you. DO hope that you have a sibling match. Are you up to some fresh picked Silver Queen Corn. It is in. We could deliver it in the next few days or if you are out you could come get it. We are in the phone book. We would need to be told when and where to deliver it. Hope to hear from you and hope this is delivered. I never did this before.

Jesse and Joan Hurd

July 27, 2006 9:33 PM  
Anonymous Anonymous said...

Hi, guys!

Glad to hear you're feeling well enough to be out and about some. Continual prayers for feeling well and, now for a good match and uneventful transplant.

We're going to Pittsburgh this weekend to bring Kate's stuff home to the "Musselman storage unit". Her last day of work out there is Monday and she'll come home then for a (hopefully) short spell before moving to Santa Barbara. Boyfriend Kris is already out there and she misses him terribly. Love having her home but not if it means moping and depression.

Thanks, Jess, for the encouraging words. Sounds really hopeful!

Love and prayers, Mussie

July 28, 2006 11:56 AM  
Anonymous Anonymous said...

wow, glad to hear the good news. km...ps i was accused of blatant cornyism by one of my children in terms of my writing style. from now on, i am channeling a non verbose spinster to ward off being a cornball. good day

July 31, 2006 5:36 PM  
Anonymous Anonymous said...

Hi Dr. Mazzola, and mo,, sorry haven't blogged lately, been busy and a little distracted towards debbie's blog since tomorrow she reenters the hospital..but i haven't stopped my prayers for you and well wishes..i hope you are still getting stronger everyday!
I'll talk to you more soon.. mdf

August 01, 2006 10:51 PM  
Anonymous jean rumsey said...

Hello Dr. Mazolla and Mo.

Glad to hear that things are going better at the moment. I have kicked up my prayers for both the Mazolla and Teklits families. Take care and will continue to keep up with what is going on.

jean

August 02, 2006 12:38 PM  
Anonymous Anonymous said...

Hi Mo and Bob,
I know, I know...it's been a while! I'm sure to catch a load of crap for it.....and read a comment a while back that said, "who's Kim?" Fine, I can take it!
Took me quite a while to catch up...not that you're wordy or anything Mo.
Miss Meg moving back to West Chester??? Well, that's only 15 minutes away...you could kill 2 birds with one stone?!
Thinking and praying for you daily. Very happy to see good news and am hoping for a sibling match for you Bob!

XOXO, Kim

August 02, 2006 1:29 PM  
Anonymous Anonymous said...

Bob and Mo

Keep up the fight!!

Tad

August 02, 2006 10:40 PM  

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