Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Friday, August 10, 2007

The doldrums.

hello: sorry i haven't blogged, but i have been very fatigued and mentally stressed battling all these so called expected complications. to enumerate: the high dose steroids caused muscle wasting, weight loss,diabetes and the shakes; a viral infection{ CMV]led to increase in blood sugar and the use of an anti-viral agent which mo gives me i.v. twice a day, this anti-viral drug has its own side effects-fatigue, low blood counts that require platlet transfusions twice a week. in the last 5 weeks i lost 6 lbs. despite eating 5 meals a day not including snacks. today HUP called and added another 10 days of the antiviral drug, good grief.
now for good news: the bone marrow graft was checked and it was 93% of the marrow; the host vs. grft reaction is under controll and we have been able to reduce the steroids and the insulin; my ability to concentrate has improved. this week i left the house 4 days in a row; sun. at my brother bill's, mon. at HUP, tues.hennings market, wed. another market.
my new goal is to get into the kitchen and try to do some cooking.
i thank you for your prayers and good wishes. iwant to thank my former partners charlie macy for driving me down to HUP[x2],and leeand yvonne arano for tolerating me and encouraging me at our wed. games night. i promise i will blog sooner. bob


Anonymous Anonymous said...

Love the marrow. Do not like the virus but it's days are numbered.


August 10, 2007 12:41 PM  
Anonymous Anonymous said...

You sound like your old self!!! I wish i would have run into you at Hennings I must be there every 3 days since laura is home Good luck in Poker heading for Ac next weekend for a little hold them lOVE LINDA SHEETS

August 11, 2007 10:51 PM  
Anonymous Anonymous said...

Well, it sounds like your body is responding well with the marrow.. that is good, hopefully all these side effects will leave you soon.. boy,, loose6 pounds even with 5 meals a day! I remember when i had my wisdom teeth pulled and they said to expect not to be able to eat for awhile, and to loose some weight.. i had lunch that same day! that didn't even work!
so glad you have mo to help take care of the shots, and you.. i've always thought she was one of the best nurses i ever
Hey, btw,,did you see Bonds break the record? Patrick was there, said it was a blast....
Hope this week brings you more concentration and strength.. mdf

August 12, 2007 12:57 PM  

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