Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Tuesday, July 17, 2007

Day 53 Update

Hi all,

Bob's doing well, although now he has steroid-induced diabetes from the high dose prednisone he's been on. He's got a kit and is checking his sugars every morning and giving himself lantus insulin in the evening. This should just be a temporary thing, and hopefully will stop after the prednisone is done. Unfortunately it's going to take at least another month to taper the prednisone off, since he was on such a high dose. Other than that things are pretty stable....the rash is better, and Dr. L. still thinks he's doing well. The white count and platelets did drop somewhat from the additional drugs, but not enough to warrant transfusions, and his hgb was up to 15.1 yesterday. We are on a schedule of traveling to Penn on Mon. and Thursdays, which generally becomes an all day adventure. Left yesterday at 9a and didn't get home until close to 3p. And I think CVS is going to create a drive-up lane just for us. Today is the first day out of the last 4 that I haven't had to drop off or pickup a prescription. Ah, but Bob just reminded me we need to go tomorrow for prednisone and insulin. So, our 2nd home away from home.

Thanks to all who continue to write....and here I must single out Mary Day. We were looking for your boys at the home-run derby and the all-star game. And of course I remember our lunch at Mondavi and our stops at the other wineries too. I use the one t-shirt I bought as a dust rag now. That was a great trip. Bob says thanks to all for the cards and e-mails(esp. Linda S). I've been nagging him about writing, and hopefully he will be on here soon. We both appreciate your prayers and concern.

Hope everyone's having a good summer. Stay cool and safe.

All our love,
Bob and Mo


Anonymous Anonymous said...

If your doctor says you are doing well, that sounds great to me. Thanks for the update. I know you can handle the temporary diabetes. Linda V.

July 17, 2007 10:09 PM  
Anonymous Anonymous said...

Boy, one thing really does lead to another , doesn't it.. well, like linda, im happy to hear the doctor is pleased.. and your hmg sounds great to me.. much higher than i've been in awhile..can you go places now besides the hospital? how is your strenght..is it slowly coming back? Mo, remember my parents favoirte priest? well, i got an email from him after i searched and wrote one to him, he's still in town..
Continue on the road to recovery (where have i heard that before?) and i'll continue to do "my part" mdf

July 18, 2007 4:52 PM  
Anonymous Anonymous said...

Mo and Bob,
It has been a long time since I have sat down and read Dr. Bobs adventure. You certainly have had one heck of an adventure with many ups and downs but it certainly seems like you are overcoming this. Thanks to all the incredible procedures and medical advances, not to forget the incredible power of prayer and miracles. Even tho we have not been in recent contact you all have been and continue to be in my thoughts and prayers. Life in Delaware has also had its ups and downs but i wont get into that now. I just wanted to say HI, miss you guys, love you alla(say hi to all my other buds at NPH) and i'm sending with this email lots of hugs from Bill, myself and Jessica.

July 19, 2007 9:34 AM  
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