Hup visit
Charlie drove me to hup on mon., his luck held and we were in and out in 90 min..i still do not have all the bone marrow results, specfically the graft %. the bone marrow was normal, no evidence of leukemia or my other disease- myloid dysplasia. the blood counts are normal. i did have a reoccurence of the viral infection[cmv] but they started treatment for that a week ago and my blood titer is now zero, so in another week i will be able to stop the antiviral medication. one of my other problems is the return of the skin reaction of host vs. graft. i have a mottled skin that does not itch or bother me, but it bothers the docs. they increased my steroids [ that does not make me happy ] and are adding a new drug to slow down the reaction and eventually reduce my steroids. although these problems are important, they are not serious and do not bother me. what really bothers me and causes most of my discomfort is the 'shakes' causedby the antirejection medication cyclosporin. i need 2 hands to hold acup of coffee, and my writing is atrocious. they are readjusting the dosage and checking the blood level twice a week. if they get this under control then iwould feel better. as soon as ihear about the marrow i will post it. thank you for your prayers. bob
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