HUP visit
HUP was a mess yesterday. charlie's luck did not hold, we were there for 3 hours. but, the news was good; the counts are climbing, the host vs. graft reaction is under controll,and the cmv infection is gone. overall they are pleased with the results. as i see it, my main problem now is the high dose steroids. the steroids make me hyper and fatigued at the same time. they can not reduce them any faster,so i will have to put up with these side effects for awhile. seeing the other patients in the waiting rooms at HUP reminds me how fortunate i am. thank you for your prayers. bob
1 Comments:
sorry about the mess at Hup, but so happy to hear the good results.. keep going on this road.and maybe they can get rid of the steroids sooner..
i have to go back to work tomorrow after the summer off, same with mark, but patrick is still enjoying summer, in fact, i just had to kick some of this friends out so i could finally go to sleep..
very happy about the good news, and i'll continue the prayers.. mdf
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