Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Sunday, September 23, 2007

Still No Word

Dear friends and family,

Well, I've been putting off writing til we got some news about Bobs' last bone marrow biopsy, but we haven't heard anything yet. Bob has an appt. w/ Dr. Luger tomorrow, so I hope we get some word then.

Bob hasn't written b/c he's been feeling punk again. The CMV titer has been on the climb for the last 2 weeks, so he is back on the anti-viral meds, but at least they are oral this time, and not IV. Unfortunately they are having the same effect of giving him severe tremors when combined with the cyclosporin. He's also had to increase the prednisone b/c the rash from the GVHD(graft vs. host disease) has come back full-fury. At least it is not itchy this time around, and so far his blood sugars have remained normal, and he is still off insulin.

On a lighter note we were able to get out to dinner a few times when he was feeling better, and enjoyed an anniversary celebration at the Mainland Inn. We also had a nice visit on Monday from our son Matt and his new bride Mandi. Matt and Mandi were married in Memphis on the 15th and decided to have an East Coast honeymoon. So we got to see the video and pictures just a few days after the wedding, which was so nice since we weren't able to be there. And speak of the devil, they just pulled up to spend the afternoon with us before heading back to Memphis tomorrow. So I'll close here and be back again when we have some news about the bone marrow.

Thank you for the prayers and well-wishes.

Love, Mo and Bob


Anonymous Anonymous said...


Cancer Cures at Risk as Funding Slows

During the past 20 years, the blood cancer community has seen significant progress in research and discovery of new treatments, particularly in childhood leukemia and some adult blood cancers. However, the debate over federal spending priorities threatens to undermine and potentially reverse these advances.

Federal funding for cancer research has been flat or declining over the past four years as research has become more expensive. Reduced support for cancer research could lead to delays in the development of new treatments that could advance cures and save lives. As a result of less funding, some research groups have already cut back on potentially lifesaving clinical trials.

Leaders in Congress say they are committed to funding the fight against cancer, but the numbers speak for themselves. The House of Representatives has proposed a 1.9 percent increase for the National Institutes of Health , while the Senate has put forth a 2.8 percent increase. Such small increases will compound the diminishing research budgets of the past few years and further jeopardize the progress to cures.

The Society urges patients and families living with blood cancer to contact their federal legislators and urge them to increase funding for cancer research at least at the rate of medical inflation.

Simply put: The greater our investment, the more lives we will save.

For more information about the Society’s advocacy efforts, please click here.

September 26, 2007 9:45 AM  

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