Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Sunday, April 29, 2007

It's a Date!!!

Dear friends and family,

Once again I must start w/ an apology for the long delay in posting. This site has changed over to Google and I was unable to log on to create a post. I finally sat down today and after many e-mails from blogger support, here I am. I think I have about 3 different passwords now! Lets' hope I can get on in the future. But on to our news. Bobs last bone marrow biopsy still had a blast count of 16%, but Dr. Luger is satisfied with that and Bob will be admitted to HUP on 5/16, with the stem-cell transplant(sct) to take place on the 21st or 22nd. Before the sct can take place he will have 5-6 days of the "big-guns" chemo to wipe out his immune system and all the "bad stuff". The new stem cells are than expected to come back 10-14 days after that. So we're looking at a 4-6 week stay. In the meantime he's being "fine tuned" and will have a heart scan and lung function tests this week. He'll also need some more labs done before admission. On 5/10 we have to go to HUP for a class to learn all about the restrictions regarding diet, isolation etc., and we still have to have a final appt w/ Dr. Luger which has yet to be scheduled. So after many months of waiting we are only about 2 weeks away. Now that it's actually near we are both a little anxious. Bob is having some sleepless nights and I have been a cleaning fool....which keeps me busy during the day and tires me out so I can sleep at night. But overall we're doing okay and I feel sure in my heart he's going to do fine.

Bob lost 5 more pounds with his last round of chemo, and needed platelets frequently, getting the last transfusion on Friday. So right now I'm trying to fatten him up, so he has something to fall back on if he loses his appetite w/ the sct which is very likely. We'll probably be busy tying up loose ends these next 2 weeks also, like taking Bobs' truck for inspection, and going over bills etc.

So, that's life right now. My Dad is doing better. I was actually able to get to Scranton on Easter weekend when he was discharged. I was going to come home Easter morning, but got the GI crud that was going around at the time and had to stay until Wednesday, since I couldn't take a chance of passing it on to Bob. My brother Tom, his wife Anna and nieces Meg and Kate came to the rescue and stayed w/ Bob, taking him for his chemo, platelets, and making sure he was fed and watered! Thank God for them and our friends who also offered their assistance.

Which leads me to thank everyone again who donated to the blood drive. I was hoping to have all the statistics for you from the Red Cross, but am waiting for an e-mail from Bonnie. I will post that when I get it. Did you all see the very nice article in The Reporter? If not you can see it on their website at www.thereporteronline.com. It was in April 3rds edition. Although being my picayune self, I have to correct the reporters' statement that most of the donors were 17 yrs. old. Most of the donors were peers of ours....so, middle-aged? There was also a lovely letter to the editor a few days later which brough tears to my eyes, and I wanted to thank the anonymous author(although I have my suspicions about who that is...SJS?...maybe?)for the wonderful words about Bob and Deb. I also wanted to publicly acknowledge Bonnie for all her hard work w/ the drive and her husband John for opening their home to the hordes that day. It was a day I will never forget, and I can't explain how wonderful it was for Bob and Debbie to experience that outpouring of love and support, and Bonnie and John made that happen. Thanks also to Kathi M. for the multitude of sandwiches from The Sandwich Mill; to Bev Z for enough paella and sausage and peppers to feed an army;to Mrs.K. for the halupki which Bob loves; to Anita S. for her home-baked goodies;to Emily T for all the candy;to Holly S for the veggies and cookies; to Ann M. for the balloons(sorry I never e-mailed you back)and to everyone who contributed libations...Lee-Lee and Joe T. that I know of and I'm sure there were more that I don't know of, and last but never least, to Debbie, for the 5 doz. donuts and chocolate cake, b/c it's never a party til you have a piece of that. And to anyone else whom I've forgotten, thank you and please forgive my rotten memory.Like I said it was a day for the books!

And finally, I just want to send out our love, Congratulations and Best Wishes to Matthew and his fiancee, Mandi. We just got the wonderful news today and are so happy for them, and want to officially welcome Mandi to the family. So a wedding in our future, and a pleasant goal to set our sights on.

Well, I think I've gotten you all up to speed, so I'll put out my usual request to remember Bob and I in your prayers. And thank you all again for your support and this time, for your patience w/ my non-blogging. Which reminds me of one more thing. HUP now has internet access in the patients rooms, so Bob will be able to blog from his laptop when he's feeling up to it, and actually read all your blogs in the room. I won't have to print them out this time around. Which will be especially nice since he is going to be in strict isolation after the transplant takes place.

All our love,
Bob and Mo

P.S. I just went to the Reporters' website and couldn't access back editions. If someone figures out or knows how to do this (maybe it's not possible, although it is on other papers' sites), could you please tell me how? Thanks, Mo


Anonymous Anonymous said...

Sounds like scary-good news. Yeah, get him fattened up before the big event. It's good he'll be able to have his laptop in his room. Glad to hear your dad (and you!) are better. As always, prayers continue. Love, Mussie

May 01, 2007 11:19 AM  
Anonymous Anonymous said...

Hi Dr. Mazzola, I hope your procedure goes really well. I will keep saying prayers for you. I know you have many former patients, friends, and family praying for you too. I am glad Mo's father is feeling better. - Linda Vince

May 03, 2007 9:47 AM  
Anonymous Anonymous said...

Hmm, I wish I needed to be fattened up- that chocolate cake sounds amazing! =) I haven't been able to post or check the blog in a long time due to my computer being out of commission for a bit there...but I'm back to checking on things and we'll send our best thoughts your way for the transplant!
Love always,
Sarah Eiser (used to be Booth) =)

May 07, 2007 7:27 PM  
Anonymous Anonymous said...

.. im back.. so glad mo sent me the address again...for some reason it kept coming up 404 error.. which i have no idea what that means....
Dr. Mazzola.. i send my prayers to you every night.. stay strong.. you have alot of love behind you .. mdf

May 10, 2007 10:31 PM  

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