Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Wednesday, March 29, 2006

Day 1

Hello all,

Well....where to begin? Not even sure if I should begin, since a good lawyer buddy of mine, once told me...never put anything in writing when you're tired or angry. Let's just say that Murphys' law was the order of the day at HUP. We arrived at Penn Tower at 9:15 am, and Bob just got into his room at 9:30 tonight. He did not have his central IV cath placed today, b/c the chemo nurse who was administering Bobs' platelets(at 2pm, after 2 lab sticks since a crossmatch wasn't done the first time) said "oh gee, you have to be fasting to get a central line, since you get conscious sedation". Of course, this was the same nurse who told us one hour earlier to go get some lunch, b/c the platelets wouldn't be ready for an hour!!!!! Than we waited for over SIX hours in admissions for his room to be vacated and cleaned. I will not go into all those gory details. Suffice it to say, I am praying that we have gotten all of the snafus for this entire admission, all over with at once. There were certainly enough of them. I felt like I was going to blow a gasket all day. Bob, on the other hand was perfectly calm, that is until his nurse Sarah told him she had "about 300" questions to ask him.Than an int. med. resident, who appeared to be 12 yrs. old, told Bob she really didn't know much of his history, and would he mind starting at the beginning. That is when I kissed him good night. I have called him since I've gotten home(the good news is at 10pm, doing 70mph, I can get from the HUP garage to Kulpsville in 30 mins.)Bob is finally all tucked in, had some water ice, and was ready for lights out. He told me he's supposed to get his cath in first thing tomorrow, which I'm assuming in "Penn time" will be around 3pm. Enough ranting for one blog. I am grateful that he's okay and finally resting in bed.

Bob is in______Room 7005 Rhoads.

His landline phone number___215-615-8116

HUP address_____3400 Spruce St.
Philadelphia, Pa.

Thank you everyone again, for all the good wishes. I will try not to use the blog as a sounding board anymore, but thanks for letting me vent(not like you had a choice). I'll be in touch.

All our love,
Mo and Bob


Anonymous Anonymous said...

Oh, for crying out loud! So much for hoping everything would go smoothly for Bob's admission! I do hope you both got a good nights sleep before the fun and games begin again. I'll be thinking of you both again and will be praying things go "a little" better today!!
XOXO to you both. Love, Kim

March 30, 2006 6:43 AM  
Anonymous Anonymous said...

Seems like these things always happen to the people who work in the hospital.. wonder why?? can't believe they had to go over all the history again.yikes.. well, i too will hope that this is the only snag in this admission and from now on everything will run smoothly!! So Mo, are you going to be up with him all day, or after work?? will check in again tonight. good luck with today.. love.. mdf

March 30, 2006 9:38 AM  
Anonymous Anonymous said...

Hi guys,
Sorry yesterday was such a hastle....here's hoping all the kinks are out of the system. Bill and I hope to get to see Bob tonight. I will call him later to see if he is wanting company.

March 30, 2006 10:22 AM  
Anonymous Anonymous said...

Hi Mo and Bob,
Hey Mo. "venting" is good for the soul. It's what keeps us sane. Hopefully, today will run more smoothly. Bob, we love you and are praying for you. Perhaps Debbie will send all her HUP nurses in to take good care of you as they did for her. And "Miracles" are in the air over there these days, so hang in there.
Love, Lorraine and Bob

March 30, 2006 11:57 AM  
Anonymous santac said...

Holding people accountable is completely appropriate. They are not entitled to forget they are dealing with a person and they should remember that stress is the breeding ground for desease. Dont be toooooo nice or the problem grows. Bringing it to the management's attention in a calm and matter of fact manner is a means of preventing mismanagement. Forget that you are two of the best people ever and the two most caring members of the medical community. Dont just let them do less. THey need to make the next few weeks better. Hope it has started with today.

March 30, 2006 1:59 PM  
Blogger Eileen said...

Hi Mo and Dr. Bob,
I got your info from Debbie--sorry to hear that you are going through the same darn thing! You are both definately added to the prayer list--actually moved to the top--prayed for healing last night at the St. Peregrine novena. Mo, please take care of yourself--I think the whole process is just as hard (if not harder) on the spouse as the patient.

On a wise-crack note--glad to hear that all the medical types get the same cracker-jack treatment that us peons do. Nice to know they don't discriminate! Hope that things go much smoother--but from our experience with our friend debbie--expect the unexpected!

Thanks for sharing your lives. Wishing you no rashes, coughs, germs, etc. etc. and get the heck back to Lansdale ASAP.

Eileen Cota (I was surprised to find that my same username and password works on Bob's site as Debbie's. Mo I am very impressed with your technology skills--you are the WOMAN!)

March 30, 2006 2:28 PM  
Blogger Carolyn and Jim Stuart said...

Bob and Mo:
Hopefully by the time that you read this, things will be back on track and progressing according to plan.
If you still have lots of concerns in the next few days or anytime during the hospitalization, I believe HUP still has a Patient Representative or Advocate. They are a great resource.
Bob, do you think that you looked as young as your resident? A friend of mine calls these younger docs, "The Boy".
Mo...good grief...drive just a little slower and make sure you wear your seat belt!!!
Prayers for both of you and your caregivers.

March 30, 2006 5:24 PM  

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