Dr. Bobs Adventure

We've created this blog for several reasons. First is to keep family and friends(including Bobs' pts.)informed of Bobs' condition while he undergoes treatment for Acute Myelogenous Leukemia(AML) at HUP. You may also write to Bob by posting a comment, which I'll print for him to read. Please feel free to pass this blog site on to anyone you think may want to join us.Instructions to blog are listed under day 12, and bobs' address etc are under day 14. Click on April Archives to find both.

Monday, March 27, 2006

Monday 3/27/2006, 2 days before admission

Hello everyone,

First of all, I have to say, please bear with me as I'm creating the blog. I thought posting a comment on Debs' blog was tough...whew! I had no idea. I just hope this works.

So, we have been rather busy this past week. Bob, in typical Bob fashion, made a To Do list 30 minutes after getting the news last Tuesday, and has been working hard on that. Getting the taxes done, going over bills w/ me, that type of thing. He feels his best in the morning, and that is when he gets the bulk of the work done. He's been sleeping well, albeit with the help of a sleeping pill. He was being plagued with muscle spasms of the back and neck after his last hospitalization, but they have stopped. Fatigue continues to be a major drawback, but he rests through the day intermittently. He is, as I write this, on his way to the post office and the Quest lab for his biweekly blood count(CBC). You'll have to forgive me if I forget, and go all medical on everyone. There are so many medical abbreviations. Just let me know if I get too technical.

We had a nice weekend. Bobs' brother Bill, his wife Ann, Bobs' sister Santa and her husband Sam, all visited on Saturday. We had a wonderful time...they have great family stories(with the most outrageous ones usually involving Bill or Sam!)...and we shared a lot over a big pot of stew and some delicious red wines. Bob loved every minute. We have been in close contact with Bobs' son Matt who lives in Memphis. He is planning to come up next week. That will be just what the dr. ordered.

The plan continues for admission to HUP on Wednesday morning. Bob will have to have a central venous line placed(a big IV in his neck) through which his chemo, blood and drugs will be given. He may need an infusion of platelets before they do that, to prevent any bleeding at the site. At any rate, we expect the chemo to be started by Wed. evening. Bob already had a heart scan done at CMMC last week and he passed with flying colors(EF of 74 %, for all you doc.s out there). That is a routine test that must be done, as the one chemo agent in particular can affect the heart. So, all that's left is to pack up. I think we may need a trunk already, what with clothing, toiletries, books, magazines, cd player, cd's, pillows, etc. Actually, maybe a pack mule won't be out of line either!!!

I want to close by thanking everyone for their calls, cards, e-mails and visits. We appreciate them all. Bob sends his love to you all, and please continue to remember us in your prayers.

Love,
Mo

P.S. I will post Bobs' room number, room phone number and address when I know them. He will have a cell phone, and the number is 215-760-5116.

28 Comments:

Blogger ~~~dee said...

Good Job Mo!!! We get to blog with Bob thanks to you with a little help from your friends and family.

Ok Bob, Kitty keeps me up to date on you with her visits, now I'll have to depend on this blog site. I will be thinking of the two of you this week. I do have one medical question... why the central line instead of a port??? Just a curious nurse to a doctor question.

I am available for doctor sitting, errands, someone to talk to... anything that is not domestic... I'm not real good with the cooking, etc. thing. But will help out in any way that I can. In fact... if anyone out there is willing to do the cooking, I will donate the groceries. Call me at 610-272-5471 or email the list and drop off place and time. nicksgram1@aol.com

Love you guys, ~~~dee

March 27, 2006 2:06 PM  
Blogger kathi said...

Dear Bob and Mo,

How thoughtful of you to set up a blogsite for us during this chaotic time. Thank you. Bob, don't forget to include the cowboy hat on the pack mule- stay strong, we love you!

March 27, 2006 3:08 PM  
Anonymous Anonymous said...

Well Dr. Mazz here we go again!Still can't call you Bob, but don't feel bad, i still call my father in law(who is coming out for his month visit) Mr. Foley.. think it's a respect thing, although now that im almost 50, i think i can still be respectful and call you Bob.. anyways. good luck with all of the next stages.. i will be thinking and praying for you guys also, take care.. mdf

March 27, 2006 3:48 PM  
Anonymous Anonymous said...

Oh, and Mo,, you're impressing me with your techonology skills.. you go girl....mdf

March 27, 2006 3:49 PM  
Anonymous santac said...

The blog is great, Mo, you did a terrific job, almost as good as the Soda Bread! Glad to hear that Matt is coming. Take one step at a time. You know where to find us for anything.

March 27, 2006 5:38 PM  
Anonymous Anonymous said...

Hi Bob and Mo,
Outstanding Mo, don't know how you did it, but I'm sure impressed. I agree with Santa...almost as good as your stew ! Know that you both are in my thoughts and prayers each and every day. Mo, anyday, anytime this house is yours. Bill and I plan to see you Thurs. nite.
love ya both,
Anne

March 27, 2006 6:24 PM  
Anonymous jean rumsey said...

Congrats Mo!!! I am impressed.
I am keeping the both of you in my prayers. As has been said, take it one step at a time. I am glad to see the Matt will be up. Mo you can call me for anything,at anytime. You know how to get me.

March 27, 2006 6:54 PM  
Anonymous Anonymous said...

Dear Bob, I joked last week about you leaving me your truck. When I heard the diagnosis I felt a little bad about saying that. But on second thought, I think you should consider it. I would take good care of it.
Until you could drive it yourself to our next Striped Bass Fishing Trip in the Spring.
www.injurlaw.com (Sam)

March 27, 2006 7:05 PM  
Anonymous Lisa Parker said...

Great job with the blog Mo...what a great idea!!!
Our thoughts and prayers are with the both of you!! If there is anything we can do, just give us a call. Hang in there! Take one day at a time and stay strong. I will keep checking the blog for updates. Also, if you play canasta when Bob is bored, just watch him! :-)

Love,
Joe & Lisa

March 27, 2006 7:06 PM  
Blogger Patty Gianfelice said...

Mo,

I'm a loyal FOD, we met at Debbie and Joe's just a few short weeks ago. I want you to know that my thoughts and prayers are with you and your husband, Bob. I'll be thinking of you guys and praying for you next time I speak to the "big guy". I truly believe in the power of positive thinking and the power of people pulling together to help others. I'll be doing my share in the positive thinking and pulling together with all the fellow bloggers on this site. Best wishes for a speedy journey into remission.

Patty
p.s. I guess this makes me a FOB as well as an FOD???

March 27, 2006 7:08 PM  
Anonymous HOLLY said...

HI BOB AND MO
GREAT JOB MO!! I'M IMPRESSED. BOB TAKE CARE AND GET BACK HOME SOON. WE WILL TRY TO KEEP YOU ENTERTAINED WITH THE BLOG UNTIL THEN. MO CALL IF YOU NEED ANYTHING!! TALK TO YOU SOON.

LOVE,
HOLLY

March 27, 2006 9:28 PM  
Anonymous Anonymous said...

Dr. Mazzola! Rumor has it, no one has the guts to be your private duty. I am MORE THAN WILLING to attend to your every need. Including foley cathether, NG, and rectal tube if needed. Just call me. My broom is always on idle. That should scare the shit out of you. Love you. Connie (and Jax by association but I am the more harmless of the two. I offer hugs, and of course, my love and support.)

March 27, 2006 9:40 PM  
Anonymous Anonymous said...

Dr. Mazzola! Rumor has it, no one has the guts to be your private duty. I am MORE THAN WILLING to attend to your every need. Including foley cathether, NG, and rectal tube if needed. Just call me. My broom is always on idle. That should scare the shit out of you. Love you. Connie (and Jax by association but I am the more harmless of the two. I offer hugs, and of course, my love and support.)

March 27, 2006 9:40 PM  
Blogger bill m. mazzola said...

Hey Uncle Bob and Aunt Maureen,

Great job setting up the blog so that everyone can keep up with wha's going on and be up to date on how things are going.

Truth be told - this is no big deal. Just another speed bump to drive over. Just gotta take your foot off the gas, get over it, and you'll be back to normal speed in no time at all.

My thoughts are with both of you. Love you both.

Bill

"You can trust us to stick to you through thick and thin - But you cannot trust us to let you face trouble alone, and go off without a word. We will be here."

-Meriadoc Brandybuck

March 27, 2006 9:46 PM  
Anonymous Cathy Goodyear said...

Mo, you did a great job setting up this webpage, I'm duly impressed. I just tried to registed my name as an official "blogger", and it didn't like any sign on name I chose. So, I'm back to being an "other". It will do for now.
Bob, you are in our prayers for a speedy recovery. I'm hoping for another miracle--but a quick one this time. I know Mary Ellen Reilly will take good care of you too, just like she looked out for Deb.

Mo, please let me know if there's anything I can do for either of you--you know I'm unemployed!

March 27, 2006 9:48 PM  
Blogger Meg Noon said...

I am so impressed at how fast this site has been set up... must be those nimble fingers of Auntie Reen. Uncle Bob, even though I see you like once a week I know I don't say it enough how much I love you and how big apart of my life you are. I am so appreciative of everything that you and Reen do and have been doing for me throughout the years. So anyways, this is going to be tough... but I know you will pull through it with the help of everyone and alittle bit of humor I'm sure.

Love you two, Meg

March 27, 2006 10:06 PM  
Blogger gerry c said...

Bob,
Hundreds of your patients tell me they are praying for you and to send you good wishes. Me, I want you to go down to that hospital and kick ass.
Vincero!
Gerry

March 27, 2006 11:45 PM  
Blogger Connie said...

Mazzola,
It is 6AM. You better be up and ready for AM care. I am honing my bedside skills and am ready for duty. Whatever and wherever you need, I will be there. Just say the word.
I always thought caring for doc's in their time of need would be an opportunity for pay-backs. With you, I would consider it an honor. Love you and your wit.
Mo, call when you need ANYTHING. We are only minutes away.
Love and prayers to both of you.
Connie

March 28, 2006 6:23 AM  
Anonymous Anonymous said...

Hey Dr. Bob and Mo..I am so impressed with the techo skills! I will be thinking of you often and praying of course. I feel like this is an internet reunion reading from the old friends! Good luck tomorrow...Brenda

March 28, 2006 6:45 AM  
Anonymous Anonymous said...

Bob,all of your friends at the fishing hole in Hancock NY send their best! And all this time Mo actually believed you were fishing!Love you! Stardust,Amber,Mudhoney and Fanny Hill

March 28, 2006 8:57 AM  
Blogger KMcLay said...

Hey Mo and Dr. Bob-

Thanks for sending along the blogsite - I'm sending along my prayers for the best possible outcome of your treatment. After our experience with Debbie we know it's going to be tough, but we also know that good things can come out of it.

Dr. Bob you must be an extra special good patient - with all these folks volunteering to act as private duty nurses - maybe I'll have to strap on my old nursing helmet and join them? (Warning: They didn't call me Nurse Diesel for nothing.)

Mo - sending you good vibes as you gear up for this undertaking as well.

All my love, fellow FOD and newly appointed FOB- Kris

March 28, 2006 9:18 AM  
Anonymous Kitty said...

Our thoughts and prayers are with you. If you need anything at all let us know. kitty and carol

March 28, 2006 11:37 AM  
Anonymous Anonymous said...

Hi Mo, Yvonne shared your news with us this am @ tennis. Needless to say, a pall was cast & the sun did not shime so brightly. However, prayers are with you both. Tell Bob that the "Ladies Breakfast will not be as much fun without our honoring guest. He is to get well quickly so that he can rejoin us soon. Cathie N

March 28, 2006 5:35 PM  
Blogger The Kimballs said...

Bob and Maureen,
Maur, I am so impressed with your techno skills. We send our love and prayers to both of you. Bob,I also want to volunteer to be your private duty. Since I have absolutely no nursing experience, I feel I would be the perfect choice. Just think of the fun we'd have:) Please think it over. You guys have been there for us over the years, with my mom, my dad's "episode" last year, and we want you to know, we're here for you as well. Any day, any time. We love you both. Nancy, Bruce, Emily and Sarah

March 28, 2006 7:36 PM  
Blogger Carolyn and Jim Stuart said...

Bob and Mo:
I am truly impressed Mo with your computer skills!!! I think our kids are impressed too that their parents can "blog"!!!
Keeping you both in our prayers and thoughts. Please call if you need anything.
We may have to take Poker Game Night on a road trip!!!

March 28, 2006 9:14 PM  
Blogger kathi said...

Dear Mazzola's

I hope you feel all of our love and support as you approach the next step. I feel so helpless, so I've decided to call in some assistance on this matter. Donna Teabags. I am sure she knows this already, but that outdoorsman themed room is as good as done. If you catch her building a campfire on Ravedin, just act as if you don't know her. I've had to do that several times. As you would say Mo....A big dating game kiss to you both. Please feel all of our love and good vibes.....Kathi

March 29, 2006 8:10 AM  
Anonymous Anonymous said...

HEY MAZZOLAS. thinking of you both today..hope day one goes smoothly.. love and prayers..mdf

March 29, 2006 9:33 AM  
Anonymous Anonymous said...

good job Mo. Our thoughts are with you every day. Charlie and Dawn

March 30, 2006 4:53 PM  

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